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Back pain

Posted , 6 users are following.

jon54193
jon54193

Mid back pain which I've not had before....severe and it's all day long! Does anyone have the same and how can you relieve it? Thank you.

0 likes, 16 replies

16 Replies

  • nataliefranc
    nataliefranc jon54193

    Posted

    Hi Jon I followed your thread on another question you asked as I have very similar symptoms to you. I have tried to keep off this site and any others for a while as I felt I was getting obsessed with research so I've not seen your latest progress in diagnosis. Have you been diagnosed now?
    • jon54193
      jon54193 nataliefranc

      Posted

      Hi Nathalie - Hope you're ok

      Still not diagnosed but new scans tmrw. I've deteriorated big time...

    • nataliefranc
      nataliefranc jon54193

      Posted

      Oh no I'm so sorry to hear that. I hope your scans show something so that at least you know what's causing your pain. I had got much better over Christmas but have started to go downhill again the last week or so. I get mid back pain too. I'm seeing a specialist again in Feb not sure they will give me anymore tests as had loads just over a year ago and nothing showed. My symptoms been going on 7 years now. Please keep us updated on scan results. Best of luck
    • jon54193
      jon54193 nataliefranc

      Posted

      Sorry to hear you slipped again, keep ficused and keep postive. 7 yrs is a long time to have such a question mark....Hang in there!
  • fenty
    fenty jon54193

    Posted

    im not sure if youre getting the same kind of pain that i get far to often,mines more of a numbness and a feeling of a pins and needles right in the middle of my spine,i get this sitting,standing or if im lying down,its very painful and uncomfortable,ive informed my g.p and am due to see a neurologist for scans etc hopefully soon,this has only become apparent since being diagnosed with pancreatic problems,i also quite often get a feel as though my body is shaking,body tremors is probably more a correct description,that is such a worrying and uncomfortable experience,again only since pancreatic problems arose,the pain,numbness,tingling in the centre of my back/spine can last for hours,then on some occasions just for a few hours,it comes and goes randomly,it took me a while to go and see my g.p to tell her about this but she was very supportive and sympathetic and got the ball rolling to see a neuro consultant,its not made it go away but its given me hope that something may be able to be done to hopefully sort this out,its bad enough the pain and discomfort i get with my pancreas,that in itself is a factor that makes me deeply depressed,hope you get help and answers jon54193,id be very interested to know what help and support youre given from your g.p and local heath authority,all the best to you jon54193.
  • manda1030
    manda1030 jon54193

    Posted

    Hi, Jon

    ​I use a heating pad or ice and pain medication. I get sever pain in my back too with CP. I always feel like someone is jamming a rusty sword straight through me. I hope you feel better soon!!

  • charles41200
    charles41200 jon54193

    Posted

    Hi Folks

    Have been suffering from lower back pain which at times radiates down my legs as pins and needles.  This has been ongoing now for 9 months after I had a severe cramp one eve in my abdomen with excruciating pain which only lastred a few minutes.  Have been to GP then neurosurgon where I have had numerous MRI scans which showed some stripping of myelin sheath on my spinal cord indicating early onset of MS.  I suggested pancreatitis and my neurosurgeon recommended a blood test for amylase.  This was slighly elevated and am awaiting the poutcome of a repeat and they am now thinking I could have pancreatitis.  The first severe bout of pain I had may have been acute pancreatitis caused by a gallstone moving and blocking the pancreatic duct and now it has progressed to chronic pancreatitis.  I am getting some pain relief with cocodamol which I think also seems to contstipate.  Hope they are now on proper track.   My urine is also more coloured than norm which I assume also is typical with pancreatitis. Is there anyone else who have experienced similar symptons as I would like to try and reassure myself I do not have MS.  Thanks

     

    • manda1030
      manda1030 charles41200

      Posted

      Hi Charles,

      With CP it can affect your kidneys which could possibly explain low back and leg pain. I do not know if everyone with CP has low back pain I do but I also have RA..... Usually the pain I deal with with CP is on the left side of my body. In my stomach area beneith my rib cage and into my mid back clear into my shoulder. I have had some trouble with my kidneys and the pain you describe sounds dimalar. I also have dark urine. And very pail stool. Vomiting and nausea is a very common experience at least in my case. Also I too have had pain meds cause constipation.... It took them a long time to diagnose me with CP so keep on them. By the time they figured it out my pancreas was so scarred and problems with calcification and stones that I am constantly sick. I wish you the best and I really hope it is not MS.... Keep smiling and your attitude high it does help!

  • charles41200
    charles41200 jon54193

    Posted

    Many thanks Manda for gettng back to me.  Yes my diagnosis is taking an absolute age and although Ido  not want to keep hassling medics I want to try and avoid the long term complications.  I am a biochemist and, in terms of science, well read so am always researching my conditon and often being accused of over "self-diagnoses".  However I empathise with those in pain and in such situations everyone trys to do their best.  My back pain does not seem to affect my shoulder but is on the left side and is now more or less constant.  I have also been presecibed Dulloxetine (Cymbalta) which I take with cocodamol and find it gives me limited relief; which medication is being effective though I am unsure.  Hope I can get a CT and/or ultrasound scan soon that show up gallstones which will then prompt them to have a look down with an endoscope as I do know it is difficult to get a firm diagnosis of CP.  Thanks Again. Charles 

     

    • manda1030
      manda1030 charles41200

      Posted

      YW Charles,

      Yes I get so frustrated with Dr's. They were oblivious to my condition. It was right in front of them all along. My enzymes at that time ran around 1,000. As my pancreas loses more functions though my enzymes aren't high very much cause I simply can not make them anymore. I am only on gabapentin and Tramodal and it does nothing. They want to put me on morphin or something worse I said no. Even though this pain gets to be so unbearable at times. I need to be able to think straight.... Yes please hound them if you have to. I wouldn't wish this on anyone! My best wishes to you! I hope they figure it out soon! Take care! ☺

  • charles41200
    charles41200 jon54193

    Posted

    I know Jon Cymbalta seems to give me a bit of a high but if it works willing to give a try.

  • jon54193
    jon54193

    Posted

    More tests had - bloodwork perfect and CT scan all ok. Professors say this IS NOT my pancreas. I still think it is, am I going mad?
    • nataliefranc
      nataliefranc jon54193

      Posted

      Oh no. That's good news in a way but I completely understand how frustrating it is as I've had the same negative tests for 7 years now almost! Everyone starts to think it's all in your head when it 100% isn't! Be nice to just have some diagnosis!
    • manda1030
      manda1030 nataliefranc

      Posted

      Please don't give up all together it took them around 9 years to figure mine out! I am so sorry you are going through this. I wish you all the best you are such a kind caring person!
    • manda1030
      manda1030 jon54193

      Posted

      You are not going crazy it is a long process to figure it out! Please don't give up. They made me feel that way finally I was diagnosed with CP, stone calcification, and major scar tissue... Unfortunately in my cause they found it only when I got deathly sick! You know how you feel! Don't let them make you think you are crazy! You are not!!
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