7 Replies

  • Posted

    Hey sandra are you on azathioprine? ? If so you need to get taken off it straight away ... I was on it and had a back reaction which started off as back pain but ended up with me being bed bound for a week.. having to have help of people to get on and off the toilet finally got a bit of movement in the second week after I came off it ... now its nearly three weeks and im finally able to go back to work tomorrow .. hope this helps x
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    • Posted

      I've had crohn's since I was 19 but probably had it since birth but I've never been on any medication for it, it's active and I am going again for the camera in May, my feet ankles and back are really playing up.
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  • Posted

    I was just going to ask if anyone had coccyx pain. It drives me insane, today I can't sit on it and I'm walking funny cos it's so sore. My tummy is really bad today aswell. I'm not on any medication at all. Hope u get some answers
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  • Posted

    Hi SandraR69

    I was diagnosed with Crohns in 2010, been on several medications and for the past 2 years have been receiving Infliximab infusion to start with every 8 weeks now every 10 weeks. Have just had my latest infusion but have been suffering a flare up since beginning of New Year, for the past 2 weeks my back has been really sore right across the bottom, I take tramadol which really helps especially with the Crohns and as I care for my disabled husband the tablets help me get on with things,not sure if backache is due to Crohns but I am giving it another 2 weeks then going to see my doctor if no better. As if having Crohns is not bad enough the other pains you get drive me mad. Hope your pain eases soon.

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