Bad day at the opthamologist.

Posted , 16 users are following.

Hi all, well I had my appointment today with the Neuro-ophthalmologist and things are not great. If you've read any of my previous posts, you may remember a few weeks ago I had a different appointment with a different doc. who told me I needed to have eye surgery within a yrs. time cuz I was in danger of losing my eyesight in one eye due to a combination of an "atypical" cataract, pmr and prednisone. I also mentioned I couldn't aford it! Now today's doc. told me I need this done asap (within a month) as he suspects prednisone is expeditiously speeding up the growth of the cataract. Same problem still exists....$$$. I got so much information today, I've not yet processed it. In fact, I've got a call in to doc. to go over some of what I was told. Something about 4th nerve diminishing??? and several other things. My brain's on overload right now. The only thing that keeps ringing in my ear is "loss of sight"! I'll keep you posted after I speak more with him. Thanks for listening....Lynda

0 likes, 24 replies

24 Replies

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  • Posted

    Btw....make that exponentially (whoops!!)
  • Posted

    Will hope for the best for you! You know we’re all pulling for you.
    • Posted

      I'm taking time to respond to each and everyone of you who's sent good wishes. Thanks to you Twopies for your kind words. I'm really needing them today. Very emotional😢. I'll be better tomorrow, but for now, I'm kinda a MESS! Just not one of my better days.

  • Posted

    A lot has to do with you, when I had my cataracts done, I wasn’t on Prendisone and surgeon advised me

     it’s up to me, Medicare didn’t cover it. Suggest you get another opinion, and how bad is your vision.....

    in Canada and I had to pay, did them a year apart.

    dont let them scare you, I’m a therapist 

    • Posted

      You’re a therapist? And that enables you to do what exactly?

      If a doctor told me I would possibly lose my sight I too would be scared!

      Sure, get another opinion but telling someone to just do what SHE wants to do is irresponsible! 

      To the OP...good luck. 

    • Posted

      Buffy, thank you soooo much for your comforting response to my post! I'm literally tearing up 😢 right now at the way you seemingly stood up for me. It's been such a bad day, not to mention an emotional one, and you were so kind to post what you did. This site is so informative and so appreciated ie, dosages and medications and side effects etc, etc....but sometimes I feel we're all guilty of forgetting there are Real human beings at the other side of these posts with real worries and real problems and REAL LIFE'S! Sometimes we just need to hear....I'm here for you! You gave that to me a few minutes ago. Thank you!!

    • Posted

      I agree with what you say, loosing your sight is not good, we have just gone through an awful six months with my hubby, he was given some eye drops that nearly cost him his sight. Doctors no nothing

       

    • Posted

      Why didn't medicare cover it?  My husband has had both eyes done, separate times, and there was never any question that it was covered.

    • Posted

      Anhaga, as I understand it, Medicare covers 80%. That leaves 20% to the patient. I'll find out more in 3wks when I've got my consultation.

    • Posted

      It was sophiesu who said she had to pay in Canada, where I live.
    • Posted

      Yes because I went private, wanted to choose my own Surgeon, snd

      hodpital. The drops were covered by Medicare. Every province in Canada 

      Has different rules, this was Quebec.

      we are all praying for you, apologies, did not realize the MD spent 3

      hours with you, not to worry, God is holding you, and it will go well

    • Posted

      I guess your reply is for Lynda, but thanks for explaining about the fees.  I was just taken aback, as you'd have thought cataract operations would be a given for medicare coverage.  I doubt this is permitted to be offered privately in Nova Scotia as there's a very strong opposition to creating a two-tiered system - although there are many many things we have to pay for privately, at least if you want to get the service in time to do any good, like physiotherapy!

  • Posted

    Just in case anyone else reads this thread.

    If when you have your eyes tested and they tell you there is the beginning of cataracts and you are on prednisolone, then if you already were glasses - ask for re-actolite rapide.  Sunlight can and does cause cataracts, especially if they have started grow.

    If you have the beginning of cataracts and don't wear glasses always use sunglasses when out it sun.

    A good opthamologist put me on re-actolite rapide when I was diagnosed with GCA and already had the beginnings of cataracts, they did not move and were still the same size when I went into remission 5 years later.

    I still wear re-actolite rapide and they have only grown at tiny bit. 

    • Posted

      Bless you, unfortunately I was too late, incredibly good fortune to those

      who are starting out....I wish I would have known

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