Bad Day HS

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Decided to write this. Had a bad day and a bad flare.

HIDDEN.

Festering within me

You finally come to my surface.

No one knows what you are or why your here

But you most certainly destroy me

Every inch of privacy you control

Every part of self esteem dissolved.

And always trapped within myself.

There's no escaping the skin.

No magic pill to give.

And we suffer.

We suffer.

Alone.

Within the creases and the shadows

Under the the covers and under the clothes.

I've always hidden you

If only I could hide you from myself.

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4 Replies

  • Posted

    So true. Well written,

    Stay strong and make the most of the good days.

    Bad days test us but I've learnt to use them as a break to hide, have duvet days and catch up on telly.

    HS sucks but life is what you make of it

    xxx

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  • Posted

    be possitive, i got it when i was 13 , now am 27 and i have dealt with this all my life. Just last year i started to treat it, did antibiotics, didnt help. I tried accutane and so far it has lessen it and it did cleared up all of my chest and back acne. After accutane i havent gotten a flare up, just some mild swollen lumps but i put this cream that helps me lessen it. theres no cure but theres little things that you can try. I just hope people seek help as soon as possible before getting bad scarring. I have stage 2-3 by the way, but next in my list is axillary laser hair removal, i know it wont cure it, but ive been told it will help.
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    • Posted

      Ericka,

      You should look into Humira! I started taking it last year after doctors approved of it being a cure for humira. I dealt with surgeries, injections and i took acutane multiple times for at least 10 years. Since being on humira i havent had a single flare up and I can be as active as i want to be with no worry! They say this is the cure for HS but I would 100% recommend asking your doctor about it and see what he thinks. Good luck!

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  • Posted

    I very much understand what you're going through. My whole adolescence was taken away by it and I have scars for the rest of my life. My best advice for you and anybody would be to look at your diet and do elimination tests because anyone I've read about or know who are in remission or because they cut out a food item in their life. For me it's white sugar. And I've been clear of all outbreaks for seven months. And that is incredible considering I never once had a time without at least one! Stay strong, you're not alone!

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