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bad night

Posted , 9 users are following.

margaret22251
margaret22251

i am glad to be going to see the doctor today, what a nihjt. had a reasanbly good day, around eight oclock, felt like body on fire , a strawberry rash agin on body lips felt as if they were swelling up chest and neck  red, felt as if i was going to faint, never had this. did not say anything as hubby going out.

started doing knitting and other crafts, went to bed at 11 felt they itching again, read and went to sleep. next thing i knew i was fidgetting in bed as i was uncomfortable, john shouting at me we cannot go on like this he had just come to bed, i said how do you think i feel to cut a long story short i came down to try and sleep he said i am going to leave i said i would not do that to you. TAKING  him in to see doc this morning got to see if i have an allery as i think i have.

2 likes, 9 replies

9 Replies

  • gwendoline333
    gwendoline333 margaret22251

    Posted

    Sorry to hear of this extra problem with your hubby.  You don't need that but I would suggest having your own bed each. Either in the same room or if you are often restless then each having your own bedroom..   I realise this is not a great fix but for some it would work.  

    Apart from PMR and GCA now I have a number of autoimmune problems and for 15 years had Lichen Planus which causes terrible skin problems over most of the body so I would not have been able to sleep in the same bed as my hubby. 

    Unfortunately your husbands attitude shows he does not understand your (our) problems.  Neither does mine and after all the original talk of going to meetings to understand he does not even bother reading information that I wish to pass on to him.  

    Good luck and take it easy.

  • carol16456
    carol16456 margaret22251

    Posted

    Oh Margaret ,poor you .Have you another room you could sleep in for a while . Or better still let husband sleep in .

    My husband and I sleep separately and a few of my friends do . My husbands up can be up and down 3 or 4 times going to the loo and as I am awake a lot I want to read or if in pain I can make a cup of tea . Some men can get very selfish as they get older and simpathy is not necessarily in there nature . Sujjest separate rooms for a short while , at least may shake him up a bit .

    Make sure he goes to the doctor with you and tell her how it is , and could she tell him

    What you are going through , and it is not in your imagination .

    I hope she can make him think . I did so much worrying for my husband when he had his stem cell transplant and my dad died at the same time , but before that and after unless he can see it I swear he my husband thinks what ever I have is in my mind .

    Once you can relax at night and toss and turn or make a tea when you feel like it I am sure you will start to find coping with all of this will help with recovery . Will be thinking of you today .Good luck Caro

  • anthony13224
    anthony13224 margaret22251

    Posted

    Margaret, I think you must be allergic to whatever medication you're on.

    Good luck with the Doctor today.

  • linda17563
    linda17563 margaret22251

    Posted

    Good luck at the doctors..........but definitely seperate beds! if only temporarily while you get on track of things.....many husbands/partners just can`t understand what we are dealing with.....it takes too much precious energy trying to make them!  Linda
  • pat38625
    pat38625 margaret22251

    Posted

    Good morning Margaret, sorry to hear you have had a rough night.  Also hubby not being supportive to you.  He is probably frustrated because you are ill and you are not available to see to him.  If at all possible I agree with the others, if you could have separate beds or separate rooms, it may help.

    The rash, well so far no Margaret I haven't had any type of rash.  Glad you are going to see the dr today and I hope she explains what it is and also explains to hubby your illness.  If you can, tell hubby that the way he is behaving is not helping you or your illness, PMR thrives on stress.  Good luck Margaret, hope you get some answers.  Pat

  • MrsO-UK_Surrey
    MrsO-UK_Surrey margaret22251

    Posted

    Margaret, you are obviously having an allegic reaction to one of your medications.  Are you taking enteric-coated Prednisolone?  On occasion we have come across people being allergic to the coating on the pills and when they wash it off their rash disappears.  What other medication are you taking?

    I so agree with all the others who have recommended separate beds.  After me relentlessly rolling off the bed all night to go top-to-tail to get off one sore hip on to another, my hubby eventually resorted to the spare room.  At least one of you can then get some sleep and the other doesn't feel guilty keeping others awake.

    I'm so sorry to hear how unsupportive your hubby is being - he really needs to be made to understand this illness.  You need to mention this to your GP as the stress will not be helping you.

    I do hope your GP will be able to get to the bottom of your allergic reaction today.  PMR is quite enough to cope with with on its own!

    • margaret22251
      margaret22251 MrsO-UK_Surrey

      Posted

      Hello , yes i was on 2.5 enteric-coated Pred, which doctor said was not right this morning, and she it is chronic urticara so trying some tablets to combat it, many thanksbiggrin
    • EileenH
      EileenH margaret22251

      Posted

      Good - as that was getting to the 999 stage of an allergic reaction in my book.

      Your husband needs a good talking to by someone - if nothing else to remind him what he said on his wedding day: "In sickness and in health". It's all too common that men manage the sickness bit when THEY are ill but it flies out the window when we are ill. I had a year of mine being desperately ill and I think I did quite well supporting him and the rest of the family who were panicstricken as well as carrying on working translating in between times. I've been seriously ill 3 times - he was in a blue funk each time and didn't go to work! And when I broke my leg once and was in hospital - all he did was stand at the bottom of the bed silent! He had to be told to give me a hug! But he's never threatened to leave when I've been ill.

      Do hope the urticaria fades quickly - I have had it since PMR started and it is wheat that causes mine so I don't eat wheat if I can help it. Unfortunately sometimes it happens and I itch but it does go away again.

      What has she given you, do you know? I find loratidine does help - though sometimes I need to take 2 tablets instead of one. Cold flannels reduce the itch a bit too - keep some damp ones in the fridge or stick one in the freezer for a bit.

    • margaret22251
      margaret22251 EileenH

      Posted

      thank you Eileen she has give me fexofenadine 180mg a day, she said it will be ok with pred.
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