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Bad reaction to prednisolone

Posted , 11 users are following.

sueTa6
sueTa6

having been to my chiropractor for 4 weeks he felt my arm and neck pains were something else and sent me to my doctor for a blood test I saw a locum who took the blood there and then and got the result back same day rang me and diagnosed PMR my ESR was23? He gave me 15mg if prednisolone  I took it morning with breakfast. By the 3 day I was crawling the walls NO sleep my body was crawling and I felt.  like a zombie But the pain was gone however I couldn't take the pills my eyes felt like they were being pushed out of my head and I was shaking. I went back we stopped the pills and I am back to square 1 trying neproxen helps the pain but back to docs next week if not gone any ideas on reaction to prednisolone , what do I do next, I did have a Very bad reaction to tegretol  many years ago nearly killed me any links?

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  • hilary_76724
    hilary_76724 sueTa6

    Posted

    The consultant who I saw privately at the beginning told me that every 3 weeks was the equivalent of about 6 mg a day of Pred and now I am on 4 weekly (had one this afternoon at doctors and probably have gone longer) is equivalent just over 4 mg. from what I have been told, although GP won't do anything without consultant's say so and its a very long wait down here on NHS, I need to stay on 120 mg for 3 more months then try to stretch it to 2 monthly and then reduce the amount each time. I just find it magic as I don't have to take pills and the injection kicks in within 24 hours. When I first saw the consultant I couldn't get out of bed or dress myself. Had the injection at 5 pm and the next morning I was a lot better and by the evening back to normal. I now have no tiredness and sleep well. Walked the dog for 45 minutes this afternoon in the woods and walked around historical Rye with some visitors for 3 hours yesterday. I'm not sure why this isn't the treatment offered to everyone.

     

    • EileenH
      EileenH hilary_76724

      Posted

      I think because you have been very lucky - for most people it is used for it doesn't last as long. 6mg/day wouldn't be enough for very many people. 
    • hilary_76724
      hilary_76724 lodgerUK_NE

      Posted

      Around January time. Yes I am probably lucky Eileen but have read research papers that favour Depo rather than Pred . Believe me I was like a 90 year old before the initial pills and then the jabs. I do think it is such a debilitating disease and nobody understands. However, I have survived being born with Marfan Syndrome, 2 perforated stomach ulcers, breaking my back  eventing my horse which is not possible now, and Zolinger Ellison Syndrome so believe me this is a very crap walk in the park but survivable. Not life threatening and as I have always done, tried to get on with it and live every day. I did have a huge wobbly before I married Miguel but I just thought I have survived before and this lovely man is there to help me over this hurdle
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