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balance and brain mash

Posted , 5 users are following.

frances85589
frances85589

I Have had one lot of rituximab with no help .I have started to become unbalanced and trip up alot.my head is dizzy and spaced out a lot feeling squashed.

My words get mixed up and come out garbled.has anyone else had this  .I am being admitted tohospital for investigation

1 like, 8 replies

8 Replies

  • mrsmop
    mrsmop frances85589

    Posted

     I hope things go well for you Frances, that sounds frightening
  • brian_qpr
    brian_qpr frances85589

    Posted

    Hi Frances. Hope the effects on you settle down. I possibly will be trying Rituximab soon so please keep us updated on how it all goes.

    Good luck

    Brian

  • danny16391
    danny16391 frances85589

    Posted

    Have you had your blood pressure checked?

    Are you on any other drugs along with rituximab?

    • frances85589
      frances85589 danny16391

      Posted

      Blood pressure ok Danny.I am on sulfazalasine,predisilone n pregabalin.been on these long time thou.only had the usual first lot of rituximab as hospital were going to move me onto abatacept as nothing they try me on makes much difference. Just wondered if anybody else had effects with rituximab thou
  • danny16391
    danny16391 frances85589

    Posted

    It sounds as your Pregabalin,could be the cause,have you read the leaflet you get with this drug,and any reactions with any other meds/drugs?
    • frances85589
      frances85589 danny16391

      Posted

      Thanks Danny but I have been on pregabalin for nearly 4 years at 550 mg day n I know that does space you out bit but this has hot worse since July.hope fully brain scan n extensive blood tests should find cause.
  • frances85589
    frances85589

    Posted

    Update on my above post.I have got worse since.I did not get admitted to hospital as no beds.my walking became very jerky and my body too.have had MRI on brain and they say OK so got referred to neurologist. Waiting for results now on MRI on neck and spine and EEG.another cock up they forgot to send me for nerve conduction test.now got to have another EEG with it.the wait goes on and now my face is spasming.horribly.

    I was OK until I had couple intravenous rituximab.my consultant has stopped all future biological drugs so suffering daily with RA

    My big question is this..has anyone else had problems after been on rituximab

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