Balance Issues/Dizziness for 7 weeks - 22 year old, healthy female.
Posted , 6 users are following.
Hello,
I was wondering if anyone else has experienced a similar problem. I will keep it concise.
I have, over the past year, suffered two attacks of Labrinthitis (as diagnosed by my doctor). I'd never had it before, and it was unpleasant, and knocked me out to the point i couldn't get out of bed, for 2-3 days, but then would gradually settle within the space of a week. My last attack was in January.
About 7 weeks ago now, I started feeling decidedly "off", as thought I was "coming down with something" with an intense, intense pressure on the bridge of my nose, and in my eye sockets. 6 weeks ago, I started feeling dizzy. When I say dizzy, I don't mean lightheaded or really as though the world is spinning - I suppose you would say more that my balance was off, it felt as though I was on a boat and unsteady on my feet.
I have now had this sensation for 6 weeks so far, in varying degrees. It has not been so intense that I am unable to function, unlike previous labrinthitis attacks (which is initially what I thought this was), and it comes in waves. It isn't constant, but I cannot seem to work out a pattern as to why and when it comes on.
At the beginning, I had occasional shooting pain in my right ear, which has since died down although a slight residual "fullness" is still apparent. After about 4 weeks, it did start to improve in as far as the horrible spaced out, unfocused feeling that came with it went, the pressure went away entirely, and I was left with what I can only describe as good days, and bad days of balance. I could go one day, barely feeling a thing, and wake up the next feeling awful. Tiredness certainly seemed to affect it, as did being hungover - but not always. As i said, there is no solid pattern.
Last week was my best week and I had 3 days were I was almost 100% free of any balance issues, and it was great! However, over the weekend, I have come down with a cold, and since the onset of this - the sensation is back to as bad as it was in the initial 3 weeks. i cannot believe that that is a coincidence!
A couple of interesting details however -
When I am on a moving vehicle (train, plane, car), I cannot feel the sensation at all.
The sensation is significantly worse when I am in a confined space (toilet cubicle, changing room) or when I am in a shop/supermarket.
My GP says there is nothing wrong with me, or my ears, so an infection has been ruled out.
It is important to note that while the sensation is unpleasant, and when it's bad, makes me feel incredibly nauseous, it has not been at any point so severe that it has made me fall over/changed the way I walk.
It is worse when I am standing or sitting still. Particularly standing. It eases when I walk (although not entirely) and when I move in general.
Yes, it is horrible. But it is manageable, and now that I know I can get to a state where I barely feel it, i'm really positive. But i'm just wondering if anyone has any insight?
I have no other medical issues bar an under active thyroid for which I have been on thyroxine for for 2 years now with no problems. I had my thyroid tested recently and it's function is normal.
Thanks,
Lauren
0 likes, 13 replies
Babz36 lauren15647
Posted
i became dizzy completely out of the blue on Mother's Day while I took my mum out for lunch. That was nearly 6 weeks ago. For a few days, I, like you, was stuck in bed but it then eased enough and I was able to walk about and do most things. I feel pretty much off balance constantly, like you worse when I'm tired. The pressure in my ears and face has subsided but this woozy feeling is hanging on.
Yesterday au I went for an osteopathy session and she noted my neck and upper back are extremely tight and could be a contributing factor to the wooziness. Yesterday evening the dizziness came back with a vengeance, I was sat in my living room watching tv and practically had to crawl up to bed it was so bad. I'm assuming I've had some sort of healing crisis due to the manipulations I have had done. I'm now stuck in bed again today as I feel very unsteady and just generally rubbish (but not vomiting thank goodness!)
im getting extremely down and depressed as I feel this will never go and my anxiety levels are through the roof. I feel better travelling in a car like you as I can't notice it as much , I can't stand and queue and sitting for prolonged periods makes me worse. My dr thinks it's either vestibular neuritis or labyrinthitis and am waiting to hear from
ENT. I think my anxiety levels are making it much worse for me, my dr has put me on Citalopram and I have low dose diazepam to take if I really need it.
I can really sympathise with you, it's horrid and debilitating and because it's not a broken leg or something people can see they don't understand. I just hope I feel better soon and that you doo too! Xx
lauren15647 Babz36
Posted
You seem to have it significantly worse than I do - and I cant sympathise enough.
One thing I left out was the fact that I have also had incredible tension in my neck and shoulders since it started (I believe due to sunbconciously holding my head straight so as not to bring on an attack. Which is stupid because my head movement has no bearing on my attacks whatsoever) - however, i have recently been seeing an acupuncturist, and i can't even tell you how highly I would reccommend it. it was since i started seeing him that my dizziness started subsiding as he worked mainly on relieving the tension in my upper back.
I genuinely believe the only reason i've had a relapse is because of this cold - and I was well on the road to recovery, due to him.
i had no time for "Alternative therapies" before, but I was desparate. And it really did help, it took me 3 sessions before i started to receive the full benefits.
I'm sitting at my desk, feeling like im on a boat right now but it helps to know im not the only one out there. I hope the above is helpful and I hope you begin to repair soon. xx
Babz36 lauren15647
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Im im just getting very fed up with myself and getting very upset as I'm a single mum with 4 kids and I feel I'm not looking after them properly. Xx
lauren15647 Babz36
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DizzyDarren lauren15647
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More or less everything you describe is something I can relate to. Standing on the spot, Standing and talking and waiting in queues is vile. You have all the hallmarks of a inner ear issue. Labyrinthitis and the same can be said of Vestibular Neuronitis can also be of viral origin and not neccessarily an infection. The virus has probably been and gone and now you have been left with after effects of the damage it caused and left you with vertigo. Ask your GP to refer you to ENT
lauren15647 DizzyDarren
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Babz36 lauren15647
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eightof8 lauren15647
Posted
have any of you tried betahistine (aka serc) for your symptoms? if so, what were your results. i have a similiar situation as you decribe. i live in the u.s. and betahistine isn't available.
thanks
steve
Babz36 eightof8
Posted
eightof8 Babz36
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Babz36 eightof8
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seeing my dr on Friday so I'm going to ask about it. I'm sick of feeling rubbish all the time! X
IH1009 lauren15647
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I know it's been a while since you posted but just wondering if you had relief from your symptoms yet. I have the exact same symptoms as you (I.e. Nothing in care, train, plane but pretty bad in confined spaces). Hopefully you're free of the symptoms now. What worked for you apart from acupuncture? I've been suffering from this for 5 months now and it is really affecting everything. Thanks.
rene_18923 lauren15647
Posted