Barely hanging on

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I want to give up so bad but I can't. I'm only living for my family these days and not for myself. This is so cruel. Ther nothing on this earth as painful as what I'm going through. I'm in my garage just to give my wife some space from me because I look so terribly ba. I just want to go somewhere and curl up and hide like a dying cat would do from suffering. It's that bad, even worse than that. I've told my physicians that I'm on a pain scale that hasn't even been created yet. Hurts to talk or even smile.

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  • Posted

    I completely understand how you feel but you need to talk about it with your wife so that she knows where your head is at. We all feel like it so I promise your not alone xx
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  • Posted

    WHere there is life there is hope ... 

    we gotta stick to hope. 

    Have you tried to change your diet or could you try ketamine ? I honestly don’t know where I would be without it thr lastvtwo months. I couldn’t eat before my 1st infiosn the pain was so bad in my mouth 

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  • Posted

    I am so very sorry. The cannabis products really help me. I so wish you could get some. Is there any way you can see a specialist in your area? My husband and I are getting a home equity loan so I can see a specialist in LA. He dies not take insurance but he is the best of the best. His name us Joshua Prager he is in YouTube if you want to check Jim out. I really think a specialist could help you out alot. I will be praying that God opens the way for you to see someone who specializes in CRPS . You really need and deserve the help. Stay strong!
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    • Posted

      He us one if the top doctor's for CRPS. From what I have heard he evaluates the patient on the initial visit and gives you several treatment plans to choose from. His first visit costs 750.00 but I heard he spends at least a full hour with the patient. Unfortunately he does not take insurance. He has a CRPS boot camp from what I have heard and also gives Ketamine infusions. I will know much more after I see him. I just sent all my paperwork and disks with films in it to his office also needed a referral from my primary care physician. Hopefully I will get accepted as a patient and get an appointment by the end if May. He has helped alot of people with CRPS. I will let you know more if I get to see him. Take care of yourself and have a great day!

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