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I have suffered for neuropathic pain for 25 years i have been on amitriptyline for the same time also use venlafaxine and others through the years I have good days and bad. Can I ask please if any of the forum has experienced burning prickling very itchy skin all over and feel like you have a wee towel wrapped around your stomach ?

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  • Posted

    wow I knew that there was many people out there that has similar problems but it seems there are plenty  of us yet the medical field has no answer for us or not enough research has been done. It seems that someone must get an association such as the Cancer organisation (they are really doing great work) for nerve pain so that enough money can go to research and start getting answers for this terrible disease.!

    I have been to 5 different Neuro specialist, and not one gave me the same diagnosus, but one thing was common and that the nerve issue was a side issue from my main illness MND!!!!!!!

    I was diagnosed at 56 and now 9 yrs later the nerve pain is my main issue forget about MND, as their is no known cure for it!!!!!!!!!!!

    What I have found through the years of personal research is that they suspect that a rogue protein that appears in your system that attacks the nerve cells and starts killing them off!! This causes the body to start attacking the protein and doing so causes the nerve pain. this at least gives some answer to the erratic behavior of one's nerve pain but still does not give a solution to the problem as the nerve system is so complex!!!!!!!


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    • Posted

      Hi Andre

      That's very interesting I need to look into that, it will be good to hear anymore information you find

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