been a bad day today

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well ive had a rough day today what with alot of pain,i was rushed into hospital 3 weeks agao as they thought i had a stroke and i was badly treated by the nurse in charge on the overnight ward so i made a complaint about my treatment but now i found out that she has falsefied my medical notes i wonder what else can go wrong> I have applied for the higer rate of mobilty on my dla as ive trouble walking does anyone else get it because of the fibromyalgia syndrome im aslo waiting to move next year because of my medical problems just hope tom is a better day pain wise and stress wise

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  • Posted

    I struggle with my walking but I have had one he'll of a year. All in I've had 58 days in hospital during the past 13 months starting with a knee injury followed by a neck injury, then a shoulder op which I had been waiting 3 years for and then I hit a pot hole when out in the car and jarred my neck again.  

    In September I was diagnosed with fibromyalgia. My walking is awful and the pain am in when walking anymore than 100 yards is horrible.

    The rattling box of pills barely knock the edge off the pain.

    I to have applied for dla but it seems that you have to be stuck in your bed to get anything.

    best of luck to you . And I hope next year is a better one for everyone.

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  • Posted

    a lot of people including medical staff still think that fibro is all in the head. 

    which of course to apoint it is because its a gland over working sending out pain signals constantly that causes it . but it certainly really enough . 

    iv been treated that way to hun . its not on we are all sufering so much already .but what can we do .

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    • Posted

      yes i have two conditions that cant be seen .Aspergers syndrome and fibro i had and still have a bad time with the medical profession and others so i avoid the doctors and people as much as i can .because these conditions are hard enough to live with with out negative and horrid things that otheres us .
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    • Posted

      yes hun thats why i dont mix any more or even bother with the doctors unless its something i cant deal with myself . i have two conditions that cant be seen . and have a really bad time most of my life and still come up against  igorance and hurtful comments at 54. iv just given up trying to explain .its not all in my head. i hope you have better time of it in your future hun . god bless 
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  • Posted

    Hello Cher

      I am so sorry for the way you were treated. What an absolute disgrace by any member of the medical. 

     Ok I was on middle rate DLA for 3 years. When I was diagnosed with Fibro earlier this year I got in contact with DLA again and told them how bad my situation has gotten, constant pain, no sleep, barely able to move let alone work. I gave all evidence from Drs Consultants etc and it didn't take them to long to decide that I am entitled to the higher rate Mobility. Fibro is now seen as a disability with DLA. I have to say I was thrilled when they changed my status cause it took me years to find out what was wrong with me and trying to get benefits to understand the hell I am going through. I am also awaiting for housing to go through my case. My landlord wants to sell up but I'm also on the 3rd floor with no lift and I can't do the stairs. So I'm hoping that the medical docs at the housing will see that I am in need of a ground floor property. 

     I hope some if any of this has helped you in any way. Much love.

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    • Posted

      Hi hun

      Many thanks for that its a great help to me i got my medical band1 with my local council but ground floorswithwet rooms and that are very hard to come bywhere we live but i had to get in touch withmy local counciller to push my case forward but who knows one day i might get lucky, Good luck with yours hun

      love and best wishes 



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