Been diagnosed today need advise

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Hi all I'm new to this group and need some advise I have had boods done as I was walking around half dead I was getting heart palps racing heart all the usual symptoms so I have been. Diagnosed with over active thyroid the t4 was 39 and t3 was high also my doc says he's gonna book me in with a specialist !! I have a swollen goitre ! I'm so upset as I'm getting married in 3 months abroad and after the wedding we were gonna try for child ! I've already had a silent miscarriage 2 years ago and really don't want this again I asked my doc questions today but he didn't seem int in answering I'm on beta blockers and  carbimazole 20 mg please can u give me dome advise as I'm feeling anxious I know I need to stay calm but as I'm getting married I'm scared and don't know anything about what I'm going through xx 

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15 Replies

  • Posted

    Thyroid disease is a many symptom  thing which yo need to learn about to be able to help yourself.Most GP's are not very good at treating it.I was ill with it for 9 years before they even diagnosed it so you are getting somewhere.Join a thyroid support group there are people on there of all ages who all have some form of thyroid disease and we all help one another.No matter how you feel or what you have got I can gaurentee that someone on there has the same or has done in the past & they can reassure you & point you in the right direction to get the help you need & you will need help if you want to start a family.It's vital you are on good treatment for your thyroid before you try to get pregnant,loads about this in the group.It's on Facebook & it's called Thyroid UK- Patient to Patient help & Support.You have to join & may have to wait a while to get added in but well worth it for all the help & support they give.
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    • Posted

      hi tigger

      i'd like to add my good wishes and to say that brewster has helped me too...i find this site is wonderful and am not really looking to go elsewhere.

      its taking control that helps.

      my t4 is 16.2 pmol/L           norm range        12 - 22.00pmol/L

           t3       4.0                                                   3.10 - 6.80pmol/L

          TSH     5.1  mu/L                                         0.27 - 4.20mu/L

      so my TSH is raised as thyroid not responding to pituitary signals...which thus keep increasing!

      your T4 is high as you're hyper thyroid?

      have you considered the strategy of eating cruciferous vegetables to bring it down?

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  • Posted

    Hi Tigger just want to say that this is the first group i found when looking for help but it is not as good as the Facebook group I have recommended in fact I only check here periodically to see if I can point anyone else in the right direction to get the help they need.This is an NHS forum & though I  dont want to upset anyone who uses it I know from personel experience that the NHS has only a few DR's who know about anything other than Levothyroxine to treat UAT.Please dont take the blinkered approach to this disease go to the facebook page & look ,you will see the members on there are all fellow thyroid sufferers so they know where your coming from & they have had to learn everything they can & band together to help each other & thats how the group started &  now there are over a thousand members & more waiting to join us,Please do not settle for one piece of advise go everywhere you can ,learn all you can
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    • Posted

      i must look in there but little chance of admission at the mo!

      I find you so helpful and encouraging brewster thank you. I hope tigger agrees!

      are my T3 and 4 ok in your opinion?

      is aiming to get below 2 realistic and achievable?

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    • Posted

      Sorry marey I can't help you with your blood results i always post mine on the group on Facebook 7 someone will always tell me what they mean for example i have been self medicating for about 4 months now & gradually increasing the dose ,i was feeling much better but did not know whether to go on to see if I could improve more.I went to see an Endocrinologist for the first time in June & she said I was overmedicated & to drop the dose by half a grain & then I have to have more bloods done next week.I just don't trust anything that the dr's say now so posted my results on the group & got several replies saying that I was probably overdosing so then I decreased.As I said i am having bloods done again a week tomorrow & will post the results before I go back to the Endo on 26th September.To be fair she did say that she did not mind me taking the Armour but would not prescribe it for me.It was the first time I had seen her & I went out of County to see her as the one in Shropshire I saw first refused to even discuss NDT just screamed NO at me when I asked about it.I told my Dr that I was going to buy some & self medicate because I could not cope with feeling so ill any longer.My Dr admitted he knew nothing about NDT & said he would refer me at which point I told him that I would not go to see the previous Endocrinologist & he kindly sent me to the next County.She had none of my records so was a bit in the dark I suppose but did say she did'nt mind me taking Armour & would see me again after this coming blood test.I am hoping that when she sees what other medication I have been able to come off since changing to Armour that she may prescribe it but if not I will continue to self medicate.Hope you managed to get the drift of all that,having a bit of a rant,After going through many years of mistreatment it really annoys me that GP's will not prescribe something that was used for 200 years with no ill effects.It's not all their fault though really because my Dr told me that he could get struck off for prescribing NDT which he obviously is not going to risk but he said that if the Endo would OK it he would prescribe it on the NHS.Guess he is just covering his own back xx
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    • Posted

      Do put your name down on the list marey,its abit slow at the moment because the admin side all have children on holiday at the moment.They are very good though & add several new members every day,Yoy wont find me on there as brewster though \i use my real name on there.Hope you join us soon,we are growing bigger every day which means more help for more people.
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    • Posted

      thanks brewster...far from ranting every tiny bit of your story is of theutmost intense interest to me...you are ahead of me on my journey...but ultimately i am hoping to try to re-balance so that thyroid meds aren't necessary at all!

      i'm not on facebook and have resisted it...what was the address again? you are very persuasive!

      very best wishes

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    • Posted

      Marey please do not be put off with Facebook ,I am not interested in the everyday nonsense that you get on there but after months of trawling every site I could find with any information about Thyroid this is the one that every person with Tyhroid issues needs.There is lots on-line about Thyroid ,most of it is American so different to here although some good tips in the Stop The Thyroid Madness book.very handy for a reference & for ideas of what to ask your GP.The group  on Facebook however is in the UK & although some people from abroad have joined most are in the UK so have the same issues as you & me.It is called Thyroid UK- Patient to Patient help & Support.I do hope that you overcome your doubts & join, you will find lots of good advise & make very supportive friends.I am 69 so not into all the rubbish that you get on Facebook but I always check every day & get lots of help.If you want to help yourself take my advice & join. All the best
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    • Posted

      thanks brewster!

      had a look and found Thyroid UK but no group called patient to patient...did find web based support but the link was dead!

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  • Posted

    Good luck tigger

    Keep us informed. wishing you every happiness for your forth coming marriage.

    love marey x

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  • Posted

    I had a goitre and from finding it I had blood test, ultrasound and biopsy before having the thyroid removed. About a 7 week nerve wracking journey.

    I didn't have to get my thyroid out straight away it was my choice. I could have stayed on carbimazone for months and delayed the operation.  Have friends with no thyroid and they have had normal pregnancies and bubs are lovely.  Just read as much as you can.

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