1. Community
  2. Bones, joints and muscles
  3. Sjogren's Syndrome

been feel ill the past few months, with different ailments, could it be SS?

Posted , 3 users are following.

kate05286
kate05286

Ive just come across this forum, and im wondering whether i could have ss, ive never heard of it before, its just that i was looking for symtoms Im having at the moment, tight, dry and  itchy eyes ,  Awful taste in my mouth, which is worse  ive noticed after drinking Coke, and feel nauseas  every day,  i suffer with Arthritis, which also seems Heightened at the moment, im getting really Fed up and Frustrated that  doctors are giving me tablets that are not working, Regards Kate,

0 likes, 5 replies

5 Replies

  • Sue1247
    Sue1247 kate05286

    Posted

    This is all very vague. You don't say what your doctor thinks it is or the tablets you are taking. Coco cola is full of chemicals. No wonder you have an unpleasant after taste. You need to look at your diet and cut out all refined foods and fizzy drinks. You could have a food allergy, thyroid issues or many other things. You won't get a diagnosed on patient UK. I suggest you go back to your doctor with your concerns.
    • kate05286
      kate05286 Sue1247

      Posted

      Hi Sue, I've had a camera test on my stomach and found the Judienal and Osophecus is bradley inflamed. Although I don't feel the burning just quite sickley' all the time, I've  been put on Lazoprazole instead of Omeprazole and Dompridone for the sickness   , but not really any improvement,I've since started the other symptoms, eyes, taste in mouth ,and my Arthritits getting worse. That's why reading about S S, it sounded  much like my symptoms, I drank Coke one day last week and found the taste got worse in my mouth . ( I'm normally not a fizzy drinker), but I will go back to the Doctors and ask to be tested for SS , as this Condistion has gone on for months now and is waring me out, Thank-you Sue for your help and Advice, Kind Regards Kate,

       

  • jenny55563
    jenny55563 kate05286

    Posted

    You could ask to be referred to a rheumatologist they can diagnose ss, there are antibodies in the blood they can check for and salivary gland biopsies for diagnosis, it is Incurable all they can do is manage the symptoms, the arthritis part seems to be the most debilitating so you should be seeing a rheumatologist for that plenty of mouth nose and eye treatments for the dryness I find naproxen helps take the edge of the joint issues 

    But I take omeprazole with it as I get bad stomach with antiinflams my rheumatologist is still sitting on the fence as far as diagnosis is concerned, I see a gastrologist also, I have primary hypothyroidism also, and have had sooo many tests but feeling a lot better having eased the joint problems a little, it helps the fatigue if your joints aren't hurting all the time  

  • kate05286
    kate05286

    Posted

    Hi Jenny.thank you for pointing me in the right direction,.and your advice.I will act on it Monday morning. Kind Regards  Kate ,
  • jenny55563
    jenny55563 kate05286

    Posted

    Hi Kate just read your post on endoscopy, did they biopsy? Have they given you a diagnosis for the inflammation? Inflammation there can cause arthritis, dry eyes etc.  They found high calprotectin in my stools which resulted in colonoscopy then pillcam endoscopy, all clear though when they scoped my month long bout of dioreah had ended. Try and push gastro for full scope, pillcam goes all the way through. 

    Jen

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.