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Sjogren's Syndrome

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  • Jaw & tooth pain

    Long story short: no, not having a heart attack today. Tooth & jaw agony apparently Sjogren's or lupus flare. Golly but I hope this goes away, and soon! It's not as painful as sinus surgery, but that's not saying much. Anybody else?

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  • Kidney involvement.

    Just wondering for any of you who have extraglandular involvement of the kidneys associated with Sjögren's Syndrome, what were your initial symptoms? Was your diagnosis of tubulointerstitial nephritis a coincidental finding or were you having particular symptoms? Appreciate any feedback!

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  • What's happening?

     Nine days ago I awoke in the night with stomach pains. Over the next few days this progressed to nausea then severe gut pain. The severe gut pain at no point led to diarrhoea, which it normally would. On the second day I started to sleep for hours at a time during the day. This sleepiness has continued...

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  • I've been over producting of saliva

    Hello, I wanted to know if with SS you can get an abundance of saliva? I woke up this morning with less nasal congestion but as the dat progressed, i notice that i was overproducing saliva so much so that it is making me nausea. I don't take any saliva medication so I don't know what could've...

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  • I'm confused, need some input

    Long story short, I was diagnosed with cfs after over10years of trying to find out what is wrong. I can deal with the aches and pains, but the fatigue is debilitating. This weird brain thing where i cant talk right or remember thingI is enough to drive someone crazy. was on adderall, now 250 mg armondonifinl....

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  • Joint pain

    My rheumatologist and I believe I have Sjogren's syndrome. I had a test blood test several months ago that was negative, but I understand that having a negative blood test does not mean you don't have it. So in a couple of weeks I'm having my lip biopsied. For many years I've had dry...

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  • sjogrens with diabetes

    i feel really sick i have the sjogrens lip biopsy confirmed. iam a hypogycemic my eno ordered a gad test antibody and insulan antibody well it says i have a score of 5.0 and 4.0 postive for both now i wait for someone in my endocrnolgist to decide whats next its and i think its making me have to pee...

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  • Bloodwork came back negative

    My doctor did bloodwork to check me for Sjogren's and of course it came back negative. I am so upset because I have every symptom of it. I just knew they were going to call & tell me they finally figured out what is wrong with me. What can I do if I have all the symptoms but bloodwork comes back...

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  • Sjogrens Syndrome Diet and Daily Exercise

    I am a 46 year Africa. American female who was diagnosed with Sjögren's Syndrome in December 2012. My systems are fatigue and achy joints and muscles.  I have started to experience dry mouth when I wake up in the. Or nine but not everyday.  I take plaqunill once a day and 15mg of presidzone....

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  • Need help

    February last year developed dryness. Had sinus issues. Ended at a RA full testing last april..and was negative for sjogrens. Tested positive for raynaurds, dry eyes and dry sinus  and A1c 5.7 and some borderline liver thing abr postive but borderline all else perfect. Never drank nor drink.  Only...

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  • Can an ophthalmologist diagnose the possibility of Sjogren's?

    In the last five years:  Dry eyes, IBS, Laryngopharyngeal reflux - which causes me to lose my voice if I talk for any length of time.  I had to leave the choir I belonged to as I could hardly speak after rehearsals - Fibromyalgia, Lichen Planus (autoimmune), worsening of dry eyes. I saw my...

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  • Health Insurance pay for dental work?

    Hello, I have recently been diagnosed with SS.  However, I have had it for years without knowing and my teeth are in horrible shape.  My question is Has anyone had luck with their health insurance helping with the dental bills?  If so, what was the process?  Thank you

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  • Hi all I’ve just been diagnosed with Sjogren

    The problem I have is with my feet, the pain is unbearable, walking is virtually impossible. I’ve been taking morphine, and now have been prescribed tramadol. But these pain killers have also stopped working. My feet look perfectly fine but the pain within is killing.   Any advice would be much...

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  • Sjogren's?

    Over the past few years I have been diagnosed with: IBS, Fibromyalgia, Laryngopharyngeal Reflux and kidney stones.  I'm now hoping I'll be able to see an ophthalmologist about my dry eyes which are really bothering me.  I was also diagnosed with Lichen Planus in August, an autoimmune...

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  • Trochanteric bursitis a symptom of Sjorgen's?

    I'm due to see my GP tomorrow to talk to him about possible Sjogren's.  My list of diagnoses from the past 5 years: Dry eyes, IBS, Laryngopharyngeal Reflux, Fibromyalgia, Lichen Planus and Kidney stones.  Another diagnosis I haven't mentioned, but which is causing me a lot of pain...

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  • Body feels extremely hot one min. freezing the next

    I have been seen 3 times by my primary and 3 times by the ER. they keep doing the same test blood work urine test, and i have no answers. i'm beyond frustrated with the same old scenario every day , plus i have dry eyes dry mouth every day as well .I have severe arthritis as well and in 2010 and...

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  • Neuropathic involvement and reflexes.

    Hi all I was wondering if anyone who has SS associated neuropathy in the legs has abnormal reflexes? My ankle reflexes are non existant (0), my plantar ones are also absent yet my knees are tending to be hyperreflexic (3+).  

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  • Bladder problems

    Is emptying your bladder any symptom of sjogrens? My kidney function is bad now I have a UTI and having problems with emptying bladder. Anyone else have this problem?

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  • Looking for tips for dealing with a dry irriated throat

    I have long-standing (47 years) Sjogren's Syndrome with all the normal difficulties.  Over the past few years I have had increasing problems with a post nasal 'drip' which is more of a 'drag' and do not know if this is causing/adding to my throat symptoms but I have a...

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  • Connection between blepharospasm and dry eyes?

    Does anyone know whether there's a connection between the two? I've had intermittent attacks of blepharospasm for about 20 years now, roughly the period in which I've had Sjogren's syndrome. It only ever affects one eye at a time, but I've had it in both eyes over this period. The...

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  • Additional diagnoses as well as SS

    whilst I probably do have fibromyalgia,   I have never had an exact diagnosis as such. I just know I hurt at all the relevant pressure points. Is there a more accurate way of diagnosing this?   i’m now having quite serious pain in my shoulder joints. Sometimes they almost throb, even without...

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  • Thyroid involvement

    I had an ultrasound scan of my salivary glands and of a hard 2cm lymph node. The letter has come back stating that the salivary glands look normal but there is an incidental finding of a 1cm node on the right side of my thyroid gland, no mention of the lymph node in my neck. Is it common to have thyroid...

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  • What to do if GP's hospital referral is rejected?

    I haven't been diagnosed with Sjogren's Syndrome, but my optician told me I have extremely dry eyes which are causing me a lot of problems.  I use eye ointment at night and have tried three different eye drops, but still my eyes are sore and one eye, in particular, is quite inflamed. I...

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  • Pins and needles from neck to finger tips on both arms

    Hi there. I'm really struggling with an outbreak of extra pins and needles just now. I have had small fibre neuropathy for about 5 years and Sjögren's for ....well probably since i was a kid.  Lately I've been waking in the night with severe upper abdominal pain - which eases after...

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  • Is it true that people with Sjogrens are more prone to cancer?

    Hello, My name is Eve and i am a 14 year old living with Sjogrens. I was diagnosed just over a year ago and things are gradually getting better for me, but i still have so many unanswered questions. I heard that people can get sjogrens then get cancer because you are more prone? I just want to know if...

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  • Problems with liver

    Hi im new to this group but I am a member of other groups due to my list of ailments. I have lupus and sjorgens which was diagnosed over 17 years ago im never sure whether it my lupus or my sjorgens playing up. I have been having problems with my liver Alkaline Phosphate levels have been going up and...

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  • Sjogrens Causing Brittle Nails

    Not sure if it is the meds or the Sjogrens but I had beautiful long nails that I gel'd every 2 weeks when suddenly my nails hurt to the touch.  After having the gel removed you can see red inflammation underneath my nails.  Now they are extremely short and yet still weak and keep cracking....

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  • Sjorgen's - extreme fatigue getting me very down!

    Hello all. I'm 33 and I was diagnosed with coeliac's disease about 7 years ago and follow a gluten free diet with no problem. For the past 2 years i have also been diagnosed with sjorgen's. I only have the dryness in my eyes (so far) and use Minims eyedrops. My main problem at the moment...

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  • Question about diagnosis

    Hello.  For years, I assumed  I had Chronic Fatigue Syndrome because, well, that was in the 90's and that's what the medical specialists told me it must be.  I experienced a very bad bout of debilitating symptoms for several months in 1990 and the only unusual reading indicated...

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  • Could it be Sjogren's?

    Hey i'm a 20 year old male and literally have no clue what is causing all my problems. I know it is rare that I could have any autoimmune disease let all alone Sjogren's as i know it is predominantly found in woman but it seems to fit to my symptoms. Okay so it started 6 months ago when i was...

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  • Trouble Swallowing with Sjogrens and Scleroderma

    I'm newly diagnosed, I've had symptoms and blood patterns for a little over a year and only recently diagnosed with both Sjogrens and Scleroderma. I hadn't in the past noticed problems with swallowing but have noticed a dry cough on and off for a few months, recently becoming worse and...

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