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Sjogren's Syndrome

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  • Question about diagnosis

    Hello.  For years, I assumed  I had Chronic Fatigue Syndrome because, well, that was in the 90's and that's what the medical specialists told me it must be.  I experienced a very bad bout of debilitating symptoms for several months in 1990 and the only unusual reading indicated...

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  • Could it be Sjogren's?

    Hey i'm a 20 year old male and literally have no clue what is causing all my problems. I know it is rare that I could have any autoimmune disease let all alone Sjogren's as i know it is predominantly found in woman but it seems to fit to my symptoms. Okay so it started 6 months ago when i was...

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  • Trouble Swallowing with Sjogrens and Scleroderma

    I'm newly diagnosed, I've had symptoms and blood patterns for a little over a year and only recently diagnosed with both Sjogrens and Scleroderma. I hadn't in the past noticed problems with swallowing but have noticed a dry cough on and off for a few months, recently becoming worse and...

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  • Looking for tips for dealing with a dry irriated throat

    I have long-standing (47 years) Sjogren's Syndrome with all the normal difficulties.  Over the past few years I have had increasing problems with a post nasal 'drip' which is more of a 'drag' and do not know if this is causing/adding to my throat symptoms but I have a...

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  • Sjogrens Causing Brittle Nails

    Not sure if it is the meds or the Sjogrens but I had beautiful long nails that I gel'd every 2 weeks when suddenly my nails hurt to the touch.  After having the gel removed you can see red inflammation underneath my nails.  Now they are extremely short and yet still weak and keep cracking....

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  • Disability

    It's anybody in disability because of Sjorgens related fatigue? Can you please tell me the steps and some information... thanks

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  • Sjogren's sufferer - what blood group

    Hi, I'm new to this forum! I was finally diagnosed with Sjegren's only a year ago, however, I was diagnosed over 4 years ago with either Sarcadosis, Sjegren's, PBC for some reason were not conclusive. Understandably, due to the initial uncertainty of my condition I have begun to research...

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  • Thyroid

    Occasionally  - last time was a couple weeks ago - I get a sore throat just on the right side, kinda deep feeling, and it goes away in a day or two. However, since my recent introduction to the world of possible Sjogren's, I've been googling more when I have odd body experiences. So...

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  • Fatigue and SS

    Can I receive some examples or feedback about fatigue levels. My fatigue is rediculous. I am omly 58 years young and have always been very active. Now I am doing well most days to get through the day with basics like feeding dogs, shower etc. Does anyone have ideas for relief from fatigue? Wondering...

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  • Very dry eyes but mouth normal. Sjogren's Syndrome?

    I was recently diagnosed with Lichen Planus and also have sore, itchy, slightly inflamed eyes.  My optician did a Tear Break Up Time and it was 2 - 3 seconds, whereas I understand the normal score would be 10 - 12 seconds, so my eyes are extremely dry.  The drops and ointment I was prescribed...

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  • Retinal Toxicity for Plaquenil

    Hi Everyone, I just had a message from my eye doctor, that he and a retinal specialist believes I have the start of retinal damage in my eyes, from the Plaquenil.  I'm 64 years old, female with a positive diagnosis of CNS Involvement of Sjogrens.  I've been on 400 mg Plaquenil daily...

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  • fatigue is unpredicatable

    Whilst I can accept that towards the end of a day, sometimes I really am fatigued. But lately I am not sleeping that well, and don't even feel like getting going in the morning. I only do so out of a sense of guilt about it. I try not  to'give in' to the feeling of really not wanting...

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  • Taste

    Lately I have had a very strange taste in my mouth consistently. Kind of like a citrus, sweet taste. Very hard to describe, but it seems to emanate from my gums. I have never had this before and was wondering if anyone else has experienced this.

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  • Sjögren's syndrome question

    Does anyone else have trouble swallowing or choking? My Rhematologist said that it wasn't from my Sjogrens and to have it checked with a Gastro doctor.

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  • Dietary changes for Sjorgrens.

    Has anybody tried dietary changes for autoimmune (in our case Sjorgrens). I just read an interesting book called The Autoimmune Fix which talked about foods that can cause inflammation notability Gluten, dairy and sugar. I'm trying it as I'm getting desperate with weak legs and neuropathy. Afraid...

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  • Still Sjogren's? New Symptoms Worrying Me

    Hi guys! I'm new to this forum & hoping someone might have experienced symptoms like I have recently or might have some helpful tips/answers as I'm not getting much out of my doctors at the moment & it's leaving me feeling pretty scared. To give you an overview--I'm 30 &...

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  • Newbie, maybe?

    I'm hoping you all can help me understand what's going on! I have had some peripheral neuropathy for the past few years that just involves tingling that is annoying but not painful or causing numbness in both legs and feet.  My mother had this same condition and it never became anything...

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  • New symptom- esphogeal spasms

    Hi All, Hope everyone is fine and hanging in there. I have been having issues with food intake as well as swallowing. I was seen by a neurologist today who believes I may have esphogeal spasms and possibly another underlying condition due to my dryness. I thought it way Celiac disease as I lost...

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  • Sjogren's and neuropathy

    I've just been diagnosed with Sjogren's from a lip biopsy that the ENT did. My Rheum says it explains nearly everything else I have: Neuropathy Small Fiber Neuropathy Restless legs Dry Cough Dry eyes Dry mouth Dental decay Taste changes Muscle pain and weakness Enlarged Parotid glands for three...

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  • Very dry eyes - advice would be appreciated.

    I don't have Sjorgren's Syndrome, but do have very dry eyes which are causing me a lot of problems, so I hope it's OK fr me to post on here. I've just been to the opticians who did a tear breakup test and one eye was 2 seconds and the other 3 seconds.  I believe the normal reading...

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  • Gastroparesis

    I have gastroparesis which meant that I had to become a vegetarian seven years ago as a result of SS. I am now struggling to digest legumes and anything that requires effort. I have to liquidise most of my food both from the very dry mouth perspective and also to aid digestion. How do you cope with the...

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  • Loss of appetite

    Hi, I am trying to get a grip on things and try not to stress and stay positive. I am having issues with food. I have lost my appetite mainly because when I eat just about anything, it drys my throat up. Can anyone tell me if this is a symptom. I lost close to 20 lbs and im scared.

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  • Sore throat from Sjogren's

    Wondering if anyone has a constant sore throat and has no relief from anything?  I was diagnosed sjogren's a few years ago by a blood test.  June 2016 had sore throat, fullness, trouble swallowing, hoarseness and it hasn't stopped.  My GERD medicine was changed. With numerous tests...

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  • Sjögren's with deviated septum anyone?

    I recently learned from my ENT that I have a deviated septum. He said these are common and didn't seem to think much of it. He did request a CT of my sinuses but hasn't got back to me as he said he would if anything untoward showed. This was regarding a strange numbness and pressure on the left...

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  • Nutrition and Sjoogen's

    Hi All, Its me again! I am determined on managing this disease. I want to educate myself on the do's and don'ts as much as possible. I've notice that I get more information from this forum since we understand than from most of the doctors I've been to. I know that everyone's...

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  • handy for weakening hands

    For 20 years I've kept a very small pair of scissors in my car console.  Didn't know just how much I'd come to rely on them, vs. lost strength of fingers & hands, until I took a trip last week in a rental car & left those scissors in my car.   I needed them at least 10 times...

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  • So many symptoms, what's going on?

    I'm still in the process of being fully diagnosed. I've always been someone so actively involved in my family's life and now I feel so weak most of the time. I have a severe dry throat which drys out my mouth and nasal passages. I have joint pain on my knuckles, shoulders and ankles. ...

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