Sjorgrens syndrome diagnosis

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I have suffered from aching joints and fatigue for a long time. I had lymphoma over 15 years ago and have an under active thyroid, type 2 diabetes, oral lichen planus and more recently a B12 deficiency and suspected Raynaud's. My aching joints and fatigue have always been diagnosed as a side effect of my other conditions.

I have had itchy/gritty/burning eyes for a long time, about 12 months ago it got a lot worse and my right eye started to droop and close by itself, I also suffer from swollen lymph nodes under my jaw, under my ear, my collar bone and a very dry mouth.

I was sent for a biopsy on the lymph nodes in January to rule out anything cancerous which where all normal.

I was referred to the eye clinic as the optician noticed inflammation in my eyes and was diagnosed with severe dry eyes. I am using eye drops every hour, a gel at night and have had punctal plugs fitted to help with my eyes. The eye doctor suspects I have Sjogren's syndrome and waiting to see a rheumatologist but the waiting list is long so I expect to be a while before I am seen.

My GP has done some blood testsfor Sjogren's which has come back normal and my ANA was negative this time, I had another ANA test around 5 years ago which was positive so I am unclear on which is accurate, I do believe you can have a false positive test.

My GP has advised that I dont "look like the typical person with Sjogren's" but I am not sure what this means?

Is it possible to have normal blood tests with Sjogren's?

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  • Posted

    I know this is an old post, and I hope you have things sorted out, but for anyone else reading:

    Yes, it is not only possible to have negative blood tests, it is fairly common.

    For further information, have a look at the Sjogren's Advocate website, or see the lecture entitled "Sjogren's: The Second Most Common Cause of Dysautonomia" on the Dysautonomia International channel on YouTube. (It covers SS in general before looking at the autonomic aspects.)

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