Been feeling ill 1 year after mono
Posted , 9 users are following.
I got diagnosed with monocluoses around march 2019. I got very sick but after a month of relaxing and getting over the worst i was gradually feeling better. The second month i started living more normal and felt weak and tired, but it was expected so i didnt mind. I was happy things were better and i was so ready to begin working out again. I started training bodyweight exercises in the beginning to gradually increase the workload. Two and a half months after getting sick i was almost back to normal and training hard in the gym. The reason i trained so hard was because i felt really good and not tired at all. Late in june i started feeling unwell again and things started going bad for me. I thought it just was a cold because i felt so awful and unwell. Through the summer it went up and down a little but in the end of the summer i felt so s****y. When school started i wasnt myself and things started getting worse. I had all the symptoms of CFS and that scared the s**t out of me. My symptoms were: fatuige, feeling unrested after sleeping long, headaches, social anxiety, depression, alot more then normal dizzines when standing up, blurry vision, suicidal thouhgts, sometimes started sweating hard randomly and just overall feeling awful. I have felt like this all the way until now and my doctor tells me i have post viral fatuige or some kind of fatuige syndrom, but says i just need to not overthink stuff and listen to my body and it will go away. I have tried different things. I have tried cutting out working out. I have tried to sleep way better. I have tried working out a little calmer but reglarry. I have tried to speak out to a psycologist but it feels like nothing helps. I have tried to push trough and live a healthy productive life and that made my anxiety a little better since i was constantly putting myself in social situations, and my depression also kinda got better. But i even felt more fatuiged and had more headaches then ever. I kept it up until corona hit my country and the anxiety is even worse and same with the depression. Things are not going well but i still have hope! Sorry for writing so much, but it frustrates me to not express my frustration to anyone so i just do it here, because many people go trough what i do. I have tried talking to friends about my health issues but they just think im depressed and its all in my head.
Im wondering if anyone can share some experience or tips on how to get better. Im still scared that i have built up something chronic that will stay in my life for many years, because if that is the case i would rather die. Do anyone have any tips on supplements i can use that have helped you guys? i Have tried some b vitamin and magnesium but thats about it and it did not do very much for me. Hope anyone has any tips on what i can do to improve my situation. Thanks!
0 likes, 11 replies
josh46287 abcc123
Edited
Wow pretty sure you just explained my last year and a half for me...thats so weird
abcc123 josh46287
Posted
Damn, sorry youve gone trough this s**t man. How old are you?
josh46287 abcc123
Posted
29
brent_83487 abcc123
Edited
what you are going through is normal. i’ve basically done the same thing. I became infected in 2016. it has been a long road. I didn’t rest properly. and I was diagnosed with chronic fatigue syndrome. things have gotten better though. I worked pretty much through the whole illness. with you being so young there is still hope. you have to rest when your body tells you to rest. if you continue to push through it will make it last longer. it is OK to do some things but listen to your body. The bad thoughts and depression are normal. I am 51 so it’s taking a longer time for me to recover. there is a gentleman by the name of Craig that normally post on here. look at some of his post it will help you a lot. it helped me tremendously. Craig if you are still out there how are you doing?
lisa29739 brent_83487
Posted
Hey Brent- I fell sick in 2017 and it's taking me awhile too. I'm 39. I'm not near as bad as year one. But if I push outside my exertion limits I relapse. Mornings are the worst. I wake up in a lot of pain and fatigue. I've had a few diagnoses since initial mono. CFS and Fibro. One doc thought Lyme. The rheumatologist who said fibro told me that people with fibro have a hard time with going into stage 4 sleep. And that I definitely have a problem with. I dream all night. Stuck in stage III and I wake up feeling awful. When it gets really bad I will take a sleep aid that literally knocks me to stage 4 only and I feel better in the morning. Since you've also been sick for so long have you found anything that helps? Other than really recognizing the signs that your body is going to go into a flare and you need to rest.
I’m so sorry you are going through this ABC. Although the fact that you were able to get back to workouts is promising. My body hasn't gotten that strong yet. I would say you just need to relax and change your lifestyle temporarily to listen to your body so that you can fully recover. I know it’s so hard - I still struggle with it. But you will get through this. The only things tjat have helped me are electrolytes (low blood pressure), iron (low ferritin), st johns wort, and monolauren.
vicky29880 lisa29739
Posted
Hi Lisa! Sorry you're still suffering, I can relate. My mystery symptoms started March 2018 a couple of weeks after I thought I was over a flu type virus. Suddenly woke up thinking I was poisoned,dying or going to be paralyzed with a page full of neurological symptoms and severe anxiety none of which I had before. Yes mornings were the worst for me too, waking up stiff, lightheaded , shaky and MORE. No doctor ever accepted this as mono and not knowing what suddenly hit me was and still is so frustrating. Thankfully at month 7 the 4th neurologist I saw put me on a 6 month b12 injection treatment that helped tremendously, dialed down most symptoms and I can say Im almost back to my old self. However Im left with an internal vibrating sensation, my worst symptom from day 1, its there every single day since this started but at least is not all day any more and has dialed down in intensity and I only feel it once I wake up in morning now...scares me so much still.. just wondering if you ever had this symptom??? I've been reading about lyme too, wondering if a tick is behind this mysery....thanks x
catchthebus josh46287
Posted
Hey, I'm suffering three years later as well. This illness has basically destroyed my life.
eric81273 catchthebus
Posted
I read your post that you recovered. what happened ?
catchthebus eric81273
Posted
I can work and function now, but my health is destroyed basically. I have neurological issues like stuttering, my hair fell out, etc. etc.
eric81273 abcc123
Posted
similar thing for me. How old are you and how are you feeling now ?
frank1326 abcc123
Posted
Hi abcc123,
I'm at 1 year with EBV & I still have problems in different areas. Some days are better than others, some not so much.
Eat fruits & veggies, take B12 & Vitamin C and don't over stress your mind or body as stress will make everything worse
Don't worry, you're not alone !!