Been ill for nearly 2 years Dr fobbing me off!

I totally feel for you I'm having similar probs not headache exactly but tight pressure on my head squeezing sensation constantly feel woozy my legs feel one min like lead weights the next like jelly as if I'm going to keel over I spend all my time inside my house S trying to go out for short walk I feel I don't have the balance I'm breathless. Even lifting my arms up is a real effort waiting for ct scan which I'm told could take weeks. Trying to be positive but so hard when feel so ill, I gave up working four weeks ago due to this, I feel I'm getting nowhere as dr will not do blood tests don't understand why. I do not suffer from depression or anxiety it's so worrying the fatigue is soo bad 

No need to apologize.  Most of us who go on here know what it's like to suffer severely.  You very well could have CFS, but I really think you should try an anti anxiety medication to see if it helps.  I've been a caregiver to my extremely ill husband for over 30 years, and he has a very severe case of CFS and fibromyalgia, but he also suffers from an anxiety disorder.  An anxiety disorder will cause severe headaches, feeling ill like nausea, dizziness, light headedness, weakness etc. and even extra pain (from the intense muscles).  And even though my husband is very weak (physically) from the CFS, his anti anxiety medication helps him tremendously, which reduces the severity of all of his other symptoms.  Severe head aches could also be from hormone inbalnces (like too much estrogen).  I used to have horrible migraines every day as a teenager, all because of a severe hormone inbalance of way too much estrogen.  I'm sure you already know this, but the bad head aches could be from stress or even eye strain too.  I recommend trying some relaxation techniques and somethng like a very small dosage of Ativan.  It has done absolute wonders for my husband and stopped him from having severe panic attacks, head aches, shakiness etc.  Also, have you had your blood sugar levels checked, and are you eating well enough?  Low blood sugar levels will cause many of these symptoms too, especially the shakes and a panicky  feeling.  Let me know how you do and what you think, ok?  Good luck to you.  Sandy

hi, I forgot to mention to you that I would recommend starting out with the anti anxiety medication at bed time to help you sleep, and then you just might not wake up with those headaches.  I don't know how well you're sleeping at night, but how well you sleep can definitely make a big difference on how you feel in the morning.  The usual starting dosage of Ativan is 1 mg.  My husband takes 1 mg at night before bed, and then during the day, if he starts to feel a head ache or anxiety coming on, he'll take a half mg. by splitting the pill in two.  A half usually helps, but if not, he'll take the other half later on if he still needs it..

Have you been tested for Lyme disease?

My CFC is a symptom of my Lyme disease And your symptoms sound very similar.

It's so hard for others to understand and it's such a brutal way to live life.

I have gotten significantly better in he last 2 years but was first sick in 2003.

Where abouts do u live?

Will try again so might be in more than one message x

Hi Claire

So sorry you are feeling so unwell and not getting any useful answers. Is not at all helpful when drs just fob you off is it.

I have had ME/CFS for 20 yrs . Had to take ill health retirement from nursing.I had migraine attacks for years prior to ME, but it became worse with ME o the point it was constant for a year before I had any relief. It came when I was out on a drug for chronic nerve pain .gabapentin which is a fairly common drug given to people with ME. Didn't do much for my other pain but even now still helps keep migraine at bay.

I would never tell other people what drugs they should be taking as not all drugs suit all people. It is helpful though to know how others are treated and find some relief. I cannot tolerate any pain meds so don't take any. I have anxiety most days on and off but again take nothing for it. Sometimes supplements can help .like magnesium .but is always best to discuss with youd dr.

I think that you have gone on more than long enough with your symptoms and should go to your go and ask for a referral to a hospital consultant. Aside from anything else ,other associated symptoms with bad headaches should be further investigated. Two lots of bloods over two years is nothing . stand your ground and say you cannot carry on like you are.it is destroying your life and you need sme definite answers.

It must be very hard to rest with a little one , but try to relax when you can. And find some calm

Let us now how you get on with your GP. Remember it is your body your life and you are clearly not well and need some relief.

Take care x