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Hi everyone, this is my first post in this group but I have been reading many of your posts the past months trying to find some relief and hope, so thank you all for sharing so many stories.
I've always had a happy, healthy life, no medical history or surgeries and suddenly right after my 45th birthday end of Feb this year (as a gift) something just hit me and I honestly thought I was dying. All my family was down with a nasty flu in January but we recovered within a week or two. However mid February I noticed my heart pounding every single night but at some points my chest felt like it was vibrating or shaking, very weird. Within two weeks this internal vibrating feeling just spread up my spine and neck and thats when everything started... I woke up with internal tremor, like all my muscles were misfiring, earthquake feeling and I must of had my first ever panic attack. It came together with, dizziness 24/7, shooting pain here and there, joint stiffness, stiff neck, side neck crampy pain, shaky hands, brain fog, patches of numbness on face and body, tingling, burning sensation, brain buzzing, brain zaps,ringing ears,muscle twitching here and there, overall weakness and so many more. I like many here was totally "off". I have seen so many doctors, all tests, MRI, are normal so they all put it down to anxiety and was given anti-anxiety pills which I never took. I new something was attacking me, this was not anxiety and not having a diagnosis ( I still dont) is the worst.
For six months I felt awful..However, in October the 4th neurologist I saw checked my vit b12 level and it was very low so since then I am on a b12 injection treatment that will end in March. It has worked wonders for me, I cannot believe it. Even if this is just a temporary solution Im happy with "temporary", after those horrible six months. My lost energy is back and that "feeling sick" feeling and dizziness is GONE! Unfortunately I'm left with my daily internal vibrating feeling, like an electric toothbrush is running inside me. I get it at night mostly and its there every single morning when I wake up since March this year, but the past two months it seems to be milder,like a purring sensation and I pray that it may be slowly fading away, fingers crossed!
Since no doctor suggested to check for mono, do you thing its too late now, after almost ten months?? Does the test show if it has been activated recently?? because at least I dont have a mono diagnosis in the past... but maybe I did younger and never new it.
Also did or does any of you feel this internal vibrating feeling?? does it ever go away I wonder?? It scares me so much and so many bad thoughts just cross my mind and its so frustrating when doctors just think you're crazy and dont help.In my case I still dont have a diagnosis!!!
Sorry fo the long post, waiting for your stories and just keep in mind that my b12 treatment has helped me to almost get my life back....just wondering if mono is behind all this..... THANK YOU
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