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Before starting Mycophenolate Mofetil....

Posted , 5 users are following.

lewisanderson42
lewisanderson42

I am about to start taking MMF (to treat Nephrotic Syndrome) and was wondering what sort of experiences other people have had with the drug?

It is being prescribed as a steriod sparing agent, and as an alternative to Tacrolimus or Ciclosporin.

Thank you in advance,

Lewis

1 like, 4 replies

4 Replies

  • wee_gerry
    wee_gerry

    Posted

    Lewis

    I am starting to take Mycophenolate Mofetil after being taken off Azathioprine which was causing a massive rash on my back. How did you get on with taking it? My dosage is 2 @ 100mg per day,

    Cheers

    Wee Gerry

  • RhianaB
    RhianaB

    Posted

    I've just started taking MMF for nephrotic syndrome. How was your experiences ? So far it drains me and makes me super tired !
  • lewisanderson42
    lewisanderson42

    Posted

    I've been on MMF for about 3 years now and the results have been excellent. I take 1 gram, twice a day. I also take 5mg of prednisolone once a day.

    To begin with (fortnight or so) I made more regular trips to the toilet than usual however, my stomach eventually settled down.

    I can honestly say that I've not had any side effects - I've still got lots of hair, my skin and bones are fine, and my general health (immunity to coughs, colds, flu) is unaffected. I take a multivitamin every day as well as cod liver oil, just by choice.

    My nephrotic syndrome relapsed once about a year after commencing MMF. Dose remained unchanged and I needed a course of prednisolone to sort it.

    I was relapsing several times a year before commencing MMF, and to have only relapsed once in 3 years is amazing for me. I hope MMF works for you as well. Give it time, and be rigid - stick to taking the pills at the same times every day. I've also stuck to taking the ones made by Roche, rather than being switched to a different brand.

    Best wishes,

    Lewis

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