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Begging for input!

Posted , 7 users are following.

ali45447
ali45447

I really am at my wits end. 

I am a 26 year old female.

I was diagnosed with fibromyalgia about 4 years ago. But since then I have seemed to get progressively worse with no apparent cause.

In the past two years or so I have noticed particularly troubling symptoms. I may wake up feeling fine, but all of a sudden I will turn ghastly pale, start shaking and feeling weak, get dizzy, feel absolutely floored with exhaustion and feeling breathless, sometimes with chest pains.

It feels exactly like anaemia (which I have had before) but my iron levels (as well as all other vitamin and mineral levels) are perfect!

It is not hypoglycaemia because it does not improve with eating. I am not deficient in anything, and my blood glucose and blood count are all normal. Blood pressure and heart rate is normal. My thyroid levels are normal and I have even had an MRI recently on my brain and spinal cord to rule out MS, agan normal!

Doctors suggest it is just fibro and have told me there's nothing they can do for me. So of course I am trying to find answers myself. What else can I do? I have to hold onto some hope of finding something...

There are days where I can hardly walk, I constantly feel exhausted and ill (and then there are days like today where I feel like I will drop down dead) and I am so worn out mentally from it all. 

Has anyone had similar symptoms to me? Have you ever had a diagnosis?

I know it's impossible for people to diagnose just based on my post. I'm just looking for a potential lead. Something I can look into, anything. 

Please help me!

2 likes, 6 replies

6 Replies

  • Bee70
    Bee70 ali45447

    Posted

    Hi Ali

    Have you tried herbal remedies? Message me privately if you need to know more as if I post on here it goes to moderator.

    Stay positive and take one day at a time.

    Sending you gentle hugs. wink xx

    • pollmadoll64
      pollmadoll64 Bee70

      Posted

      I know what you mean as I went through the symptoms you are describing .Personally I have taken gluten out of my diet and juice pure fruit and vegetables and feel much better plus I have Epsom salt baths.
  • charlotte1824
    charlotte1824 ali45447

    Posted

    Have they looked into your heart? Paleness, shaking, chest pains etc is definitely indicative of heart if they have ruled out, glucose, anemia, thyroid etc. When they tested your thyroid did they check for antibodies or just do the normal tsh level?

    Hashimotos can cause surge feelings like that, I've had what you are talking about so I have looked into Hashimotos but I was negative for the antibodies but during my research lots of people mentioned episodes like that.

    Do you drink caffeinated drinks? Tea, coffee, soda etc, do you smoke? Are you on any meds? Sometimes the caffeine can make you feel like that especially mixed with noicotine. It could also be side effects of medication if your on any. I now only drink decaf tea. Do you get palpitations? Perhaps buy a blood pressure monitor from chemist they are quite affordable now and monitor your blood pressure, heart etc. I seem to have low blood pressure and a high heart rate, your blood pressure could be dropping as mine is quite low when I feel like that. Take photos of the screen if anything is up and make a note what you were doing so you can present any odd findings to the dr.

    Finally there is something called POTS. Look up the symptoms of that as it can cause similar symptoms too.

  • andrea03046
    andrea03046 ali45447

    Posted

    Hi ali i have been dignoised with fibro 3 years now, i have been refurred to the gym by doctor, but it still hurts aftre wards, but i defo feel how you are feeling hun just try and keep ur chin ok smile
  • gill50535
    gill50535 ali45447

    Posted

    Hi ali, i am exactly the same as you but the other way around.october the 22nd 2013 i blacked out walking down the street and from then on i had horrid dizziness,hot flushes, pin & needles all over even in my mouth,body shakes and judders, double vision,painfull palpitations i could hardly function and felt like i was on the verge of a seizure all the time.After doctor after doctor & medication after medication, every test blood test,brain scan,balance testing,heart monitor for a week, a nuerologist,ENT and rheumatologist i was finally diagnosed on december 2nd 2015 with fibromyalgia. I was told that my body has basically gone into overdrive and to my body a 1 mile walk will feel like 10 miles.. i have been refered to the pain clinic for a pain management course but iv'e been managing it for 2 years already but will see what they can do.. my mobility has gradually got worse over the past few months and i don't know if i will get even worse yet. will just have to wait and see.. but rest assured all the symptoms you have can definitley be the fibro.. fibro isn't just pain,there can be a lot of other weird and not so wonderfull ailments that go along with it.. 

    sending hugs.. xxx

  • tiggers1
    tiggers1 ali45447

    Posted

    Hi Ali I've been dignoses about 8 months now but have had simp tons of what your describing for yrs . Mine started with back problems and mri scans of my backed showed ive get discs problems that are hitting the nerves in my lower spine and 2 discs in my neck that cause a lot of pain my neck and head . This led me to mri in my brain but was all clear like u so was all my blood test . That gave me a dignoses of fibro . But some day are so bad that I struggle to walk I somtimes use a stick to walk with on bad days but have had days were I've had to say no to going out . I wish you all the best your not alone warm hugs hun xx
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