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Hi everyone. This is my first post and i am terrified i have CES.
In a nutshell. I have extreme sciatic pain from hip to toe(groin, him, thigh, calf, shin and foot) on the right side. I can no longer stand up. I am in extreme pain and am losing the will to live. I am due to have decompression surgery in January. My problem is L4, L5 and S1 and my facet joints are too big. My L5 disc is out as far s it can go and according to the MRI is completely compressing the sciatic nerve.
A couple of months ago i developed Foot Drop. I told the Hospital and they didnt say much and now they say its probably permenant as i have had it a few months now. As well as the agony my leg is numb and so is my foot. I have contsant pins and needles and horrible sensations ranging from hot and cold and hyper sensitivity. My right foot is always freezing cold to touch and my feet go blue. I am on Tramadol but nothing works.
In the summer i was admitted to hospital because i felt like i couldnt empty my bladder. I stayed in for a few days and then discharged. It gradually got better.
Occasionally my legs went to jelly and i would slowly fall to the floor. The best way to explain it is that i had 'clown' legs, they went at the hips. I would just crumple to the floor. I was able to get up again after a moment. It would also happen if i went up stairs. As i reached the top stairs my legs would be bent and i had to pull myself up the last few steps. This still happens sometimes.
Last week i got the most incredible low back pain. It came from nowhere. It was right accross my lower back. Previousley the back pain was more to the right lower back, never both. I am unable to leave the house or walk so i dont know why i got it. I dont tend to have back pain when i have sciatica. Its usually one or the other. The pain has been all consuming. Its hard to breathe because every tiny movement is agony. One minute i have no pain in my back, just the sciatica then the next minute its back. Then I fell over on Monday morning and couldnt get back up for about 30 minutes because of the pain. I didnt realise i had wet myself at first. I was horrified. I told my Dr and he sent me to the hospital by ambulance. After having a finger up my bum i was told it was unlikely to be CES but they wanted to keep me in to manage my pain. I dont have a problem with my bowels or have any saddle numbness.
I know all the signs for CES and feel its at the door knocking for me. I am terrified. I have a young daughter who is disagled and am struggling to cope. I have spent the last 10 months sitting on a pc chair on wheels in my kitchen. This is my life, not much but it could be significantly worse if i develop CES.
Can anyone please put my mind at rest. It seems the hospital are not concerned and maybe rightly so. Am i being a bit of a drama queen?
I am so low i keep having bad thoughts. I am dreading the operaton because it may not take my pain away and i couldnt cope with that. I dont have any family anymore and no friends to speak of. I am trapped in my home with no help and no one to talk to.
Thank you in advance to take the time to help me understand whats going on. Sara
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