being refered to an infectious disease doctor, scared
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My doc just called and the culture from my broncoscopy grew two unusual bacteria, the pulmonoligist had never heard of them, so he is referring me to the ID doctor. I just finished a long course of antibiotics, and am feeling good right now, so maybe am clear. Anyway, it is scary, and another doctor to see! Has anyone been to one of these?
1 like, 8 replies
susan71068 cuddles1
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cuddles1 susan71068
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susan71068 cuddles1
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Stixlabushka cuddles1
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Airway clearance, lots of water, healthy diet and excercise, you'll be fine. A good reference is your lung function test both FVC AND FEV1.
Goodluck
message me if you need to chat
steve62514 cuddles1
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I have been into hospital under the care of an infectious diseases specialist consultant in relation to an infection that was causing me fevers 5 years ago - nothing to do with bronchiectasis - mine proved to be a South-East Asian parasite, but the principles are the same. These specialists will simply run a lot more tests and interview you in detail about your travel, contacts condition and and then start running results against a much broader (potentially worldwide) database of info about bacteria/infections than the average anlaytical lab at a hospital will have. I was at a very large Regional hospital St James in Leeds but it stumped then and only when the samples were sent to the Lodon Hospital of Tropical diseases was the parasite identified. The treatment drug had to be imported from Switzerland so rare was the incidence in the UK. The drug cured me completely in about 3 days flat!!
Just cos it's not normal does not mean it's dangerou or untreatable.
Best wishes ..
cuddles1 steve62514
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steve62514 cuddles1
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I don't think IV antibis are any worse than tablet antibis for side effects - must have read the intruction leaflet of 5+ different antibis in recent years as my lungs have been getting sorted out. The leaflets often cover the IV version as well as tablets and I don't recall there being any reaction differential between soluble injectable and tablet form.
Interestingly Papworth nurses did not specifically time the 3 doses to meet meal times, which many leaflets recommend for tablet antibis (to minimise digestive disruption. Doses were 7am/around 2pm and 10pm. +/- one hour. That may have been specific to the two antibis they gave me though - Tazocine + one I am waiting to recall the name of (consultant's release memo chased).
Re detecting my infectious disease. I mostly ive in rural Thailand. My local Thai GP commented afterwards that the parasite causing the infections is so endemic here that any decent GP would nail the symptoms and order relevant stool tests. As it was it had not been seen in Yorkshire before! While I was in hospital, coincidentally a one hour documentary on the London Hospital for Tropical Diseases ran on TV and the next day I commented to my Leeds consultant (real nice Irish guy) that the boss there seemed to be a very committed clinician. "Yes he's world class - it was him who told the staff to analyse for opisthocarsis when he spotted where you lived."
cuddles1 steve62514
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