Being Tortured by Lights, Fog, and a Red Flower in my Eye
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I have a long story here...
I was born 40 years ago with Retinablastoma. It took 70 surgeries, I lost my left eye, and my right eye barely survived. But for 40 years I had vision in my right eye. I received such treatments as twice the amount of radiation a patient was supposed to be given at the time (1980 - 83) and my eye was frozen solid multiple times.
But still, I came out of it with vision for my whole life. This is a very summed up rundown of my history.
My issues now... as of the start of February.
My eye (the right eye) filled up with blue fluid on the left side. I had been drinking a lot of energy drinks, and I thought I'd over done it and caused some kind of blood vessel to burst. I went to see an eye doctor and he said it was not that, he said it was the radiation treatment I had as a child was causing the optic nerve to swell and fill my vision with fluid.
But the fluid was not inside my eye. He never said where he thought it was.
So after 2 weeks of waiting it to heal, he put me on Prednisone. For 3 weeks I took Prednisone to try to (I assume, he never told me) to boost blood flow to my eye again.
It did not work, and during that period I began to see things like honey comb vision when I woke up, and then a 'flower' appeared in my vision. The flower looks like 6 red petals around one yellow flashing dot in the middle. I think it is part of the honey comb vision I'm seeing, but the honey comb vision goes away after I wake up and get blood flowing. the 'flower' does not go away.
The flower glows super bright like a neon light at night when I wake up.
In April, I noticed that it was starting to puff out red mist, I assume bleeding. This was around April 7th I noticed it. On April 10th, the flower seemed to 'turn on' and it got larger and started to dominate my sight while I wake. My eye started to glow with a red mist and I thought it was filling up with blood.
It has been doing this every few hours, 3 times a day, and lasts for 4 to 5 hours before it 'cools off' and goes in to a phase of light blue fog over my vision.
It stays in the light blue fog phase for roughly an hour to an ahour and a half before another 'red phase' starts and the flower grows large again, and begins to fill my sight with a red or yellow neon fog.
At night the fog gets brighter, lights become super sensitive and the light seems to get captured inside my vision.
After 2 weeks of this, I finally asked someone to check my Blood Pressure, and it was nearly 170/120 during the height of a 'red phase'
We contacted a family doctor and went to get checked out. This was April 21st. I got put on Blood Pressure medicine to lower my BP and have been having mixed results, but it is finally maybe comign down to normal elvels.
My eye doctor heard about this and told me to just 'wait and see' and scheduled my next appointment for 3 months away in July.
But I am being tortured by the light retention and the red phases. The bright neon fog and the flower is still visibly puffing out red mist in to my vision at night.
Laying in bed at night is like torture, I can't even close my eyes to avoid it, its there whether I close my eyes or not.
I don't know what's going on and nobody has helped me at all.
Iwent to a 2nd eye doctor and he seemed mad I was there for a 2nd opiniona nd told me 'i have no idea what is happening to you, sorry' and left.
I don't know what to do, just 'sit and wiat' is all i've been ttold.
It is torture.
0 likes, 2 replies
alexwandering
Posted
I started using a Screen REader in March which allows me to ue MS Paint to draw some rudimentary look at the original issues I was having. This pic does not show what is the main problem now with the neon brihgt fog
But what it does show is the flower on the bottom left. The flower I think it sthe main villain of what i'm experiencing now, and I don't have any idea what it is.
alexwandering
Posted
One important detail is that both eye doctors I've seen hav elooked in my eye and see all the scar tissue and damage from 40 years ago, but they otherwise say that the eye is showing no signs of new damage, no signs of a return of the Retinablastoma, and no signs of anything like an 'eye stroke'.
This is why my eye doctor told me to just wait and see for the BP to cause my eye sight to return.
But yeah, I'm still being tortured every day by the flower and the colored fogs