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Bell's palsy 9 months in

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michlove1985
michlove1985

Hi,

I haven't posted on here for a while, I have just reached the 9th month.

I got Bell's palsy in July 2016 and I had complete paralysis, I took prednisone at the beginning, had numerous ENT appointments. It was only in October, after no recovery at all, that I was offered electrical stimulation, I had this twice a week for twelve weeks, with about 60% recovery I was told by the physio to have a break and let my face relax for a couple of weeks before deciding if I would like to continue. In this next couple of weeks synkinesis kicked in, and since then I have had no other recovery, my eye closed when I smile, yawn, eat and when I close my eye my mouth pulls up. I've been to the doctor who said he would look into possible therapies to help, but as yet I've heard nothing.

The last 2 weeks I have had headaches every day just on my bp side, a terrible ache in my neck on bp side, the whole of my top lip twitches and under my eye keeps twitching on my bp side, does anyone else have this after this amount of time? Is it a good thing, is it a kickstart to more recovery?

Can anyone help?

Doctors are proving useless

0 likes, 3 replies

3 Replies

  • sharon24495
    sharon24495 michlove1985

    Posted

    I don't think I would continue with the electrical stimulation.  I have heard negative things about it   How did you come to try it?  Did a dr. recommend it?  You can get botox for the synkinesis.  I have done botox but it is only temporary.

    • michlove1985
      michlove1985 sharon24495

      Posted

      A doctor at the ENT clinic suggested I have the electric stimulation, I know Botox helps with synkinesis but there are no clinics near me, doctors are just seeming to be useless, this pain I've been having the last couple of weeks is driving me mad. I'm not sure if it's normal after 9 months?

    • sharon24495
      sharon24495 michlove1985

      Posted

      I have BP still , after 3 years but thank goodness I never had any pain.  Neurologist or plastic surgeons do botox.
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