bells palsy documentary

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hello, i have had bells palsy since december 06 and as a consequence am making a documentary about the condition as it is not widely known about. I have done a video diary since getting it and am keen to speak to others that have it too. I would also like to film on other person who still has the condition, i know some people may be too embarrassed but i feel that the condition should be more widely known about as most peple associate it with a stroke, i am also keen to find out exact causes and how people have recovered etc. please let me know if you're interested, or even if just to fill in a questionnaire for me, thanks! sarah jo x

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6 Replies

  • Posted

    Hi sarahjo,

    I had Bell's Palsy 20 years ago. it 'appeared' two weeks before my son was born and I was treated fairly successfully with steroids / heat (lamp) & physio over a period of several months.

    It has left me with a slight weakness on the left side of my face and a tendency for the left eye to 'weep'.

    it's a rotten painful condition so good luck with your own treatment. hope the documentary helps others.

    regards,

    javascript:emoticon('smile')

    Smile

    dulchas

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  • Posted

    Hi,

    Just thought i would let you know my experiences with bells palsy.

    My daughter was 4 years old back in 2000 when she was first diagnosed with this condition but recovered well with steroids.

    Then last November she got it again at the age of 12 and had steroids again which helped her get better along with physio from the hospital.

    Both times she had just had an ear infection so we thought this might be related (she suffers from a lot of infections) went to see a specialist and he couldnt find anything wrong so he discharged her.

    Ive just got back from the hospital and she has it again aged 13, more steroids have been given and an appointment will be sent for the consultant to see her again. (no ear infection this time but she has just had a chest/throat infection and conjunctavitus)

    Hopefully this time she will be sorted out.

    Good luck with your treatment

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  • Posted

    hi i got this 4 days ago im 30 years old, it came on suddenly startin with my left not closing, now my face is paralysed full down left side im absoloutly distraught, meant to b goin on holiday in 3 weeks and dont want to go!! im dreadin takin my kids bak to school 2morow too cos im worried people will stare, t thought id be back to normal within next few weeks but after reading other peoples experiences im not so optimistic, im taking the steroids which ive been prescribed and im clinging to hope
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  • Posted

    hi sarah my name is sue and i have had bells palsy for three days i havent had the condition for long but if i can help in any way just let me know hun sue x
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  • Posted

    Those of you who've had Bells Palsy for days/weeks have nothing to worry about. I had it when I was about 10, and I'm now 46. The left side of my face has always been semi paralysed. I expect a lot of people think I've had a stroke.

    At the time I had (and I can't remember what it was called) electo therapy? I had to go (weekly I think) to have electric shocks in the side of my head, but they didn't really work. I was offered steriods, but because I was young my parents were warned that it might affect my growth (remember this was years ago) so I didn't have them.

    I've always been very self conscious about it. I remember being called cyclops at school because my left eye is always partially closed.

    I'd be happy to fill in a questionaire, but I definately won't go on film. I hate even having my photo taken cos I'm so ugly!

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  • Posted

    I have had it for 2 years and some months I am about 80% maybe a little less recovered I don't think I ever will recover fully I still experience a lot of pain in my ear and loss of hearing and bouts of vertigo It can be depressing at times some times I forget but I cant really forget as I feel it pull every time I eat , smile, and any other emotional expressions.
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