Posted , 4 users are following.
My daughter is 9 and had a sudden onset of belly button pain that is dull constantly but extreme when pressed at belly button and below. She screams out in pain when she urinates. She cannot eat without pain afterwards. She literally foams from her mouth. She now has cloudy urine on occasion. She has had an extensive work up of urine tests, endoscopy, colonoscopy, HIDA scan, ultrasounds of appendix and gallbladder, blood work.
Nearly all the tests turned up nothing except the HIDA scan. The first one was inconclusive and the next one showed a 36% output, with 35% being the low of normal. She is 9. I would expect that there should be more attention given to this, but that is just coming from a mom.
She has had hydronephrosis since birth with no complications. Her GI docs told me that she had biliary dyskinesia as a working diagnosis, but her Pediatrician told me she needs to see a psychiatrist.
This is a life loving adventurous girl who was thrilled about everything. She had just finished swimming lessons and was excited to be learning a new stroke and to practice it when this pain suddenly came on.
She has been through tortuous tests, been hospitalized and is still saying it hurts. I believe her when she says this is real. I don't know what to do.
0 likes, 9 replies