Benefits with PVR

Hello Angela,

I see you haven't lost your sense of humour despite the weather.  Trust you keep well.  Bit better here today but quite variable.  Still on reduced dosage of Ruxolitinib but am under no illusions that it may go up again as it was reduced to assist with my immune system coping with other problems.  Feel OK thankfully and may it long continue.  Stay well.

Peter.

Good to hear that you still have your head above water. Almost literally, yesterday.

I an enjoying watching the traffic tailbacks relating to the Chatsworth garden festival.

Glad it's not me.

Keep smiling.

I know what you mean.  We have the Glastonbury one to contend with in these parts.  Not sure if it is held each year but the roads are cluttered in every direction with the A303 jam-packed all the way past Stonehenge.  The weather makes no difference it is always solid.  Enough to send anyone into orbit, without the "music".  Good time to stay at home in the garden.  Wish you well.  Does the traffic pass your home?  You seem happy enough.  

Whoa, now that really is busy. This is the first ever Chatsworth flower show (trying to rival Chelsea) and I have only had reports by word of mouth.

Hubby walked into Bakewell, about two miles from Chatsworth, and said that the queues were building up nicely at about ten, Then I heard from someone who was stuck in gridlocked traffic in Chesterfield, about twelve miles away, at eleven thirty, And finally the same person got away at five thirty swearing that she would never go near the place again.

And it was mega bucks to get in, to park, to have something to eat and maybe to think about buying a plant.

Still, any crowd is my idea of hell on earth so I think they only have themselves to blame.

I have visited your area several times over the years and know a little of your geography.  Very lovely area.  With your description of the crowds and traffic problem I think I might have bent the Chesterfield spire too.  Chatsworth is a good place to visit - always something going on there it seems.  Ever been pricey to my knowledge.  I entirely agree with your last comments.  How true.

Reminds me of visits to the hospital waiting rooms.  I can but admire the way they get through things though.  Very rarely kept waiting and if so, always an apology.  How are you progressing with your ailment Angela, all under control?  Good wishes.

Peter.

I just ignore it Peter, I just ignore it. 

I have bad tinnitus (hubby says I have always been deaf!), a sore toe (gout?),  a pain in my stomach (spleen?) after a meal and I have had to give up picking fights with muggers because of the bruises from the aspirin. But I just get on with stuff and try to ignore it all.

Much worse things happening to people around the world than a few aches and pains. Much worse. 

Have you voted????????!!!!!!!!! A waste of time really here because our incumbent has a huge majority and my little drop in the ocean of political sewage isn't going to change anything. Still, I went and did my democratic duty, griited teeth notwithstanding.

That's a very stoical outlook.  Can nothing be done for your symptoms Angela ?   Gout is very treatable.  I know from personal experience.  The pain in your stomach should be investigated - it can be serious but is treatable too.  Ignoring things will not make them go away as you will know.  As for muggers, you did not say what happened to them.  Sure, bad things happen everywhere, they will never cease to occur.   Show them what you are made of !!

Voting ?  Not my favourite subject Angela but I can't disagree with your outlook.  My daughter paid us a visit today, insisted we should do the honours.  Done and dusted.  Quite painless but I don't believe a word.....

Relax and be vigilant, you never know who is about.

Peter

The fact is, I'm not really that interested in my illness. I was slightly curious about it at first but having asked the consultants a couple of questions about it and receiving their answers that they really didn't have much of a clue about why it exists or picks a certain person I decided to concentrate on things that provided me with pleasure instead.

Besides, the busy consultants had a roomful of people to see all of whom looked like they were more in need of the valuable time and concern and so on than I was.

I joined this forum for a quick peek to see how many other people there were. That was all really.

I don't "do" ill. It bores me.

I only once confronted a person that I thought was going to mug me. I screamed loud enough to wake the devil and kicked him on the shin and ran away. He didn't follow. I suppose I had the advantage of the element of surprise.

A question of mind over matter I perceive.  Great if you can live it.  Certainly it is only recently that any real information has come to light about PV etc.  I remember  the occasion when visiting the consultant when I was told that the gene causing the ailment had been isolated and would undoubtedy bring benefits in due course.  But that didn't happen for some time.  Initially no-one really had much idea of what PV represented.  Things have moved on now I am happy to say, but PV does affect people differently and each individual will find their way forward.  Good luck.

Peter.

Yes, we are all different. It would be a terrible world if we were all the same, wouldn't it? 

And good luck to you too.

Thanks Peter,  I have applied for PIP and have had my face to face interview but wanted to know whether anyone else has received PIP just in case I am refused so that I can put an appeal in. 

Here's hoping someone has been successful.