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Benepali

Posted , 3 users are following.

martin31040
martin31040

Hi, just after some info, I have just been informed that I've been prescribed Benepali, anyone with experience of this drug ?, thanks for any feedback.

0 likes, 5 replies

5 Replies

  • linda23834
    linda23834 martin31040

    Posted

    Hi Martin, I started Benepali about 6 months ago after trying the usual Methotrexate and a cooler of others. The side effects outweighed the benefits.

    I inject once a week and have found the side effects a lot better. I can now walk without a stick. I still have pain, but not as bad, plus the inflammation and swelling has improved. Don't get me wrong, I still have flare ups and bad days, but much improved.

    I also have a steroid injection every few months, which also helps.

    I hope it helps you, good Luck.

    • linda23834
      linda23834

      Posted

      Sorry that was meant to say a couple of other meds.
    • martin31040
      martin31040 linda23834

      Posted

      Thanks, I couldn't tolerate Methotrexate, have been on sulfasalazine for years, but the last year or so inflammation has been rising, so they are starting me on benepali hopefully I won't have to many side effects.

    • linda23834
      linda23834 martin31040

      Posted

      I couldn't tolerate Sulfazalazine or the Methotrexate. I hope the Benepali helps.

  • Smiley16
    Smiley16 martin31040

    Posted

    Hi Martin,

    I was given Benepali September last year after being unresponsive to methotrexate and hydroxychloroquine. At the time, without steroids i was in a wheelchair with such pain and inflammation in my knees and feet and some other joints too. I could barely get out of bed and make it to the bathroom.

    I inject Benepali once a week. I noticed improvement after just a few days, which has continued to work. Now my rheumy has said I'm in remission! I have no pain at all and have started to exercise again as I have been immobile for so long I lost muscle mass in my legs. I am a police officer and have a young daughter so this drug has given me my life back. I think it's amazing.

    The only side effect I get with it is redness and itching at the injection site for a couple of days.

    I wish you luck with it too and hope it continues to work for all of us.

    S 😃

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