Posted , 4 users are following.
Hi all, just giving a thumbs up to Benepali it's working well for me, last blood test about a week ago showed CRP inflammation down to 0.7 and up to now with no side effects, anyone getting good results with Benepali?.
3 likes, 10 replies
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linda23834 martin31040
Posted
That's positive results Martin. So pleased Benepali is working for you.
martin31040 linda23834
Posted
linda23834 martin31040
Posted
mary76396 martin31040
Posted
Hi Martin, I'm not on Benpali but I am on Actemra and that is working so well for me that I'm off MTX (yay!). I was told that each different biologic targets a different part of the immune system and when they get a match with an individual's RA it works like turning a tap off. Great news for you and me that we have found our matches and long may it continue. Good luck for the future.
martin31040 mary76396
Posted
Hi Mary, yes it's good when you get something that really works, especially good if you get no side effects, thanks I hope they keep working for you too.
carol303055 martin31040
Posted
Excellent! Yes, it works for me although I'm on prednisolone as well, trying to reduce it slowly. It's so lovely being even relatively 'painfree,' it's wonderful. Carol.
martin31040 carol303055
Posted
Hi, I still take sulfasalazine 2 grams a day Rheumatologist said it's best to continue with it along side Benepali, like you said it's good to have a lot less pain, and in my case and maybe yours that stiffness in a morning wrists hands etc.
linda23834 martin31040
Posted
Hi Martin, I tried Sulphasalazine, unfortunately it didn't agree with my stomach. So had to stop it.
carol303055 martin31040
Posted
Hi Martin, like Linda, I couldn't tolerate Sulphasalazine, but in my case headaches the like of which I had never experienced. I suppose I'm a bit resigned to the fact I'm unlikely to be completely pain free but I can enjoy life and, most importantly for me, I look after my 2 small grandchildren. My biggest concern at the moment is any more infection that means I have to stop my Benepali and my symptoms flare up again. So glad it working for you and hope this gives some hope to others. Best wishes, Carol x
martin31040 carol303055
Posted
Hi Carol, I had a bad cold and cough a few weeks ago I never stopped the Benepali but I thought at the time if I should report it to GP or rheumatology department but it cleared up after a week or two, I know you're supposed to report sore throats etc, I'm ok with sulfasalazine, I have other health issue IBS, and Tinnitus there's no drug injection or tablet for them but as they say what can't be cured must be endured, thanks Martin.