Benepali

Posted , 4 users are following.

Hi all, just giving a thumbs up to Benepali it's working well for me, last blood test about a week ago showed CRP inflammation down to 0.7 and up to now with no side effects, anyone getting good results with Benepali?.

3 likes, 10 replies

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10 Replies

  • Posted

    That's positive results Martin. So pleased Benepali is working for you.

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    • Posted

      Thanks Linda, the previous blood test the one before the last I had had been 14 CRP but I had a bad cold cough, but I was thinking the Benepali had stopped working, then my last blood test 0.7 CRP, so it was the cough cold that had raised the CRP inflammation.
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    • Posted

      Glad it was the cold causing a set back and the Benepali is still working. It has helped me a lot, but still need a steroid injection every 3 months for the pain in my feet. Iv been given a course of Prednisone to take on holiday with me. Doing a long haul flight, so a bit anxious. It will be interesting to see the effects of them. 
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  • Posted

    Hi Martin, I'm not on Benpali but I am on Actemra and that is working so well for me that I'm off MTX (yay!). I was told that each different biologic targets a different part of the immune system and when they get a match with an individual's RA it works like turning a tap off. Great news for you and me that we have found our matches and long may it continue. Good luck for the future.

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  • Posted

    Excellent! Yes, it works for me although I'm on prednisolone as well, trying to reduce it slowly. It's so lovely being even relatively  'painfree,' it's wonderful. Carol.

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    • Posted

      Hi, I still take sulfasalazine 2 grams a day Rheumatologist said it's best to continue with it along side Benepali, like you said it's good to have a lot less pain, and in my case and maybe yours that stiffness in a morning wrists hands etc.

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  • Posted

    Hi Martin, I tried Sulphasalazine, unfortunately it didn't agree with my stomach. So had to stop it. 

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  • Posted

    Hi Martin, like Linda, I couldn't tolerate Sulphasalazine, but in my case headaches the like of which I had never experienced. I suppose I'm a bit resigned to the fact I'm unlikely to be completely pain free but I can enjoy life and, most importantly for me, I look after my 2 small grandchildren. My biggest concern at the moment is any more infection that means I have to stop my Benepali and my symptoms flare up again. So glad it working for you and hope this gives some hope to others. Best wishes, Carol x

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    • Posted

      Hi Carol, I had a bad cold and cough a few weeks ago I never stopped the Benepali but I thought at the time if I should report it to GP or rheumatology department but it cleared up after a week or two, I know you're supposed to report sore throats etc, I'm ok with sulfasalazine, I have other health issue IBS, and Tinnitus there's no drug injection or tablet for them but as they say what can't be cured must be endured, thanks Martin.

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