Posted , 4 users are following.
Hi all, just got some blood test results after a month on Benepali, CRP which is a measure of inflammation is down from 24 to 1.9 so that's good, but I've got see the GP and I've been told to take multivitamins with iron, any way I see what he says about what is going on.
0 likes, 8 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
linda23834 martin31040
Posted
That's good news Martin, hope you are feeling some improvement. I'm interested to know why you need Multivitamins. Not heard that one before. Good news though. 😊
martin31040 linda23834
Posted
Thanks Linda, I think my hands have improved, but I got some damage to the joints years ago, slow diagnosis so I can't right that, and I may have some osteoarthritis due to past work, but it's still good reducing inflammation which is problematic in other areas.
Gloria814 martin31040
Posted
martin31040 Gloria814
Posted
Hi, I reckon it's anemia related, it's been an ongoing problem but may have worsened, but still positive inflammation down, it's not good to have high inflammation in general.
Gloria814 martin31040
Posted
that is great that your CRP level went down to that # !! I started Cimzia/ bad side effects after 3 doses of Humira so I hope this works. I have Crohns and this new one seems to be aggrevating that but it's tolerable
Still have pain but not as bad---I did some reading to see how long it takes to work and it said could be 3 to 6 months.
Good luck to you!
esther77657 Gloria814
Posted
Hi Gloria. I also have RA and Crohn's. However, I have just recently swapped from Cimzia to Humira (the other way round to you) as Humira was considered the better one for Crohn's. Cimzia was definitely better for RA for me so I am interested to know how the Cimzia works for you. Can you keep me posted? Esther
Gloria814 esther77657
Posted
Hi Esther The RA is definitely improved with Cimzia. But I can't seem to get the Crohn's better managed while on this. GI doc has started me on miralax and or colace to see if it helps. I still have some RA pain but tolerable--no more burning pain in foot/ ankle and 2 fingers. The 2 docs disagreed on which drug to try after humira stopped. GI wanted infusion but RA doc said it won't help her RA. There was also another med--by mouth -think Entyvio but not sure that she said would help both. So it is a trial and error situation like most of us are having to deal wih
Let me know how you are doing also. Yes, humira was the first choice and seems to be well tol. by many / just didn't work for me b/c of side effects. Can't take any NSAIDS b/c of Crohn's
esther77657 martin31040
Posted
That is brilliant news! What is also fantastic is that you are being closely monitored and the multivitamin/iron deficiency has been spotted and addressed! I ended up having an iron infusion (probably because I wasn't so closely monitored)! At least this way, you can get on top of any potential deficiency straight away and hopefully, they will continue to keep a close eye on it. So pleased to hear the new medication seems to be working well.