Benign endometriosis

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I've just been told they have found some benign endometriosis but been offered no treatment at all just to repeat smear in 6 months time. I'm in pain all the tine constant stomach pains headaches and constantly exhausted all the time. Any advice on what you do next

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6 Replies

  • Posted

    What kind of doctor did you see, and what kind of tests were done, Carol?
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    • Posted

      It a gyn I seen after my smear results came back as abnormal. They took a biopsy from me that's all really. But I'm just sick of feeling like this everyday. I could list my symptoms . Constant pain in stomach bloating anxiety fatigue headaches the list goes on

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    • Posted

      I hope some of the younger women will chime in on this. I am unaware of biopsies being a proper diagnostic tool for endo. Doc would have no way of telling how extensive your case might be from a biopsy. Endo can be growing in many places at once and those many possible sites outside the uterus can play havoc with your abdomen.

      I also dispute anyone ever characterizing endo as "benign." Sure, maybe there's no cancerous cells right there in the exact spot where tissue was biopsied. No one can say more unless they biopsied your entire abdomen, which of course we don'twant them to do. But to characterize your endo as benign is not only incorrect but also downright cruel for it isn't benign in your life. (The bloating for me could come on so quickly and badly that I'd have to change from loosely comfortable clothes to something that didn't touch my abdomen at all, and then anything I'd eaten or drunk in the last 6 hours might come up, even if that was only 10 oz of water.)

      You didn't mention how old you are. Even with a good doc - and I am not convinced yours is - the younger we are affects what they may offer us. At the very least if you can't find someone else, you'll have to go back to this doc to ask how he can say that your endo is benign without looking everywhere for more spots, and benign or not how is doc going to help you live your life with endometriosis. Also, are you in UK or elsewhere as that may affect treatment.

      You may want to wait a few more days for some younger women to answer. I'm 62 and in the States ;-) If no one does, repost with a different title, maybe "Help! Endo with idiot doc"

      You are not alone.

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  • Posted

    U need to get in w a endo specialist that's what I'm in the process of doing right now. What does benign endo mean

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  • Posted

    Hi

    How was the diagnosis made?

    If you have symptoms all the time, then the only advice I can give is to keep badgering your GP to get referred to a specialist.

    Good luck!

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    • Posted

      Hi the diagnosis was made through a biopsy. I always have really sore stomach and sometimes I go off my food with it. It's driving me nuts. I didn't think it coukd be diagnosed from a biopsy

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