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Has anyone else been diagnosed with BFS, or BFS with cramps?
I am a 39 year old male who is currently on no medications.
My symptoms started about 10 months ago with twitches that spread all over my body. I saw my general doctor and eventually two neurologists before getting this diagnosis last month.
I've had multiple blood tests, x-rays, a MRI of the brain and spine, and and EMG test, as well as multiple exams in neurologists offices. Everything has come back normal.
Over this time, in addition to the random twitches, I have also experienced:
- Burning/tingling feelings (in random places for a brief time, similar to the twitches)
- Minor issues slurring a word by not correctly forming a letter or word
- Increased clumsiness when reaching for or moving something in my hands (but not dropping things)
- Stiffness in my hands, fingers, and knees
- Slight tremors in my fingers and hands
All of the symptoms come and go from time to time. There are days and times when I feel fine, or my issues are in one part of my body. Later (hours, days, weeks, months) an area will improve and somewhere else will start to have issues.
It is annoying and frustrating, but has generally not interfered with my daily life, other than to up my anxiety level. I have been misdiagnosed before. I try not to think about it too much. Sometimes my mind goes back to negative thoughts, especially that they could be wrong and it could be ALS, but I try to ignore those thoughts when they happen.
I am going to go back to my neurologist next month and try a nerve blocker medication and see if that makes things any better.
Just looking to hear from others that have received this diagnosis over the years and see if they've ever tried a medication and if its made any difference and how they have dealt with this condition.
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