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Hi everyone, I was diagnosed with CFS/ME almost a year ago so I'm still learning how to live with this horrible illness! I was managing to work 25 hours a week before November but then I had surgery to remove an ovarian cyst and I've gone down hill since then, I haven't been able to go back to work as a nursery nurse and I spend 99% of my time laying on my sofa in pain and exhausted.
Has anyone else had CFS/ME and then had it made worse by surgery, trauma, stress or another illness?
Also do other people have good and bad days? Some days i can't get off my sofa and I feel dreadful, I suffer badly with pain in my legs, feet, back and arms. Some days I can manage to get up and go for a short walk or pop to the supermarket! It's so strange how it differs so much from time to time, however when I do have a good day and do something I really pay for it the day or two after 😞
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if you pay for activity afterwards, as I use to the when you are good you are doing too much. You need to learn the point at which your body accepts that level of activity without punishment. Once you know that point and it comes with trial and error I used that as a base to start to function again. Very slowly I increased my activity level like a marathon runner and that worked for me and I was back starting to lead a normal life.
hang in there and try serious pacing and learn to say no I can't do that today, best of luck
BTW, I also feel it one or two days after I've done to much, I was told its one of our many symptoms..Bonnie
it's a lot for our bodies to take on the added trauma.
I also cycle, very predictable, every other day. Unlike those who pace themselves, I grab at every ounce of energy, and then recover the next day. But, I have this cycle regardless, even if I don't push hard on the in between days. Unfortunately my mood correlates with the energy levels. It's not as serious as bi-polar, but I get severely depressed on recovery days, or what I call conservation days. That's my positive spin.
hope this helps.
Best of luck and I know what it is like-HORRIBLE
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