Between consultant and surgeon
Posted , 6 users are following.
Hi
Sorry it's been a while,
Recently I have been to see my consultant and my surgeon and
If my head wasn't already mashed it's is now,
To say they are on different pages is an understatement
Consultant lovely man tells me things in human speak not doc lol
Says leave my head as it is headaches will be fine with pills
Ok happy clare no need for op
Go see my surgeon equally as lovely although speaks in more doc
So clare get lost more easy but that's why clare takes people with her
Anyway sorry people I'm rambling if u are still with me
My surgeon has said I need decompression surgery
He's ordered another mri scan with dy thats Thursday
But why would no doc say do nothing and the other say something completely
Different
I don't want surgery but then how does
Also was wondering from people that have had it are u completely asleep
For the op as iv been told some brain ops u are woke up
And I don't won't that
Sorry iv gone on a bit one scared girl here any help or advice would be most grateful
Xx
0 likes, 12 replies
helen11122 clare1983
Posted
No you are completely asleep, I was passed round for 7yrs till someone who knew about chiari set me on to have a diagnosis of chiari malformation. And not migraine or arthritis which is what I was getting treated for. But at last you are seeing some one who knows about the condition. Everyone recovers different from this operation, some are up and about, unfortunately I had sickness and nausea really bad. But it eased the pressure a lot. It's not a cure but to prevent condition getting worse. It is scary as you say no one wants op. But loads on here will help and talk about there experience and help you through it, your not alone hun, even when you had op. Xxx
clare1983 helen11122
Posted
That's a big relief just knowing if an op is what is needed I will be asleep thanx hun xx
helen11122 clare1983
Posted
yeltzer clare1983
Posted
It seems its the old rivalry between medical and surgical. Neurologist will give you pills - Neurosurgeon will operate. I have some of the symptoms returned. My GP referred me back to my neurologist (who kept me waiting a year initially before sending me to a neurosurgeon) against my wishes, neurologist says migraines etc. He did refer me quite quickly back to my neurosurgeon who recommended a proceedure,check on CSF.,that was last February. Since then heard nothing from neurologist, own GP didn't want to know (now just changed GP). There seems to be no love lost between ologists and surgeons.
clare1983 yeltzer
Posted
Fingers crossed mri scan to show CSF flow Thursday will be all good
b2wc97455 yeltzer
Posted
yeltzer b2wc97455
Posted
b2wc97455 yeltzer
Posted
Evella4 clare1983
Posted
Hi Clare,
My symptoms have worsen. I can no longer stand for long periods at a time nor sit. I have to be propped upright all the time or I start going into severe body spasams. My headaches and neck pain is the worse. I'm finally going to have surgery. But I'm terrified. I can't believe this is happening. I'm living a nightmare. I've lost 9 pounds already because it hurts to swallow solids. Are you having these problems?
clare1983 Evella4
Posted
Wow evella,
I'm not having even half of that Iv only just started on meds for my migraines that's why I don't understand why the surgeon has even suggested surgery he said I have reduced function in my right side and that is strange because I'm right handed not left and I keep loosing my balance
Hugs to u though seems mild compared to what ur going though xx
jehan_91998 Evella4
Posted
Hi
My daughter also can't swallow has a very bad pain at the back of her head and neck with weakness in the hands muscles can't even open a door or hold a pen and difficulties in breathing when she is sleeping have seen several surgeon unable to make a decision or a treatment even though she was diagnosed as chiari 1 malformation.
Hope you get better just be optimistic and keep smiling
b2wc97455 clare1983
Posted
So, be positive, at least you knew what you have got just make sure to get NS who has done several of this operation. GOOD LUCK