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There is a new found condition that seams to point out that some people who have epilepsy that is NOT controlled by AEDs (anti epileptic drugs) might be having the fits due to an undiagnosed autoimmune problem..Im an epileptic mum of 3 and have had no control all my life.ive had the epilepsy since I was 7yrsold. I have penti-mal fits...grandmal fits and im very photo sensitive..I have the petimal ones every day sometimes hundreds per day and I have suspected lupus too. But my point to this posting is that if the epiepsy drugs arnt working it could mean that if they detect GAD antibodies in your blood(its a simple blood test) that you could respond to a treatment called IVIG...which is an immune suppresent..
Basicaly the epilepsy is caused by the pressance of these anti bodies and if the correct this it stops the epilepsy..A trial was done on people who didnt respond to the AEDs and 67% ended up totally seizure free the rest had a big reduction in the fits and only 5 people didnt respond.
If you type in google or go on to the epilepsy research web page and type in AUTOIMMUNE EPILEPSY it will blow your mind..I have just been tested for it and will find out the results the end of this month as it takes 3 weeks for the results..
Iso hope I come back possitive because ironically the immune suppresent would help my lupus too.
IF you fit this catagorey where the AEDs dont work ask your consultant about GAD it could be the biggest turning point of your life .......
Good luck and let me know how you go xxxx
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