Bilateral apical lung fibrosis and pleural thickening

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I got the above mentioned in a chest CT scan report.

​Also said ' Patchy air space and tiny ill -defined nodular opacities in right lower lobe "

Should I see a lung specialist? Or is this an 'age' thing. I am 63 yeards old

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  • Posted

    Yes, see a specialist as soon as possible.  I have idiopathic pulmonary fibrosis, and have had it for several years. Moor 18 months I have been taking Esbriet (also known as Perfenidone) a drug that became available 18 months ago.  It appears to have stopped e progress of the disease, and although it will not cure it, it seems to have stopped its progress.   Make sure your specialist at least considers it, and don't take "no" for an answer. If he does not know about it, he should,read the May 2014 New England Journal of Medicine.  At your age you are YOUNG!  I am over 80 years old. Good luck!

    neville

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  • Posted

    hi  shaq.  question? have you ever ben exposed to  asbestos? in any form or under any circumstances/  ,and does your CT scan suggest pleural  thickening ,and plaquing.   .also do you  have  effusion from the pleural anomalies?  ie   blood and debris from the  abused tissues of the  pleura  and lung lobe?
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    • Posted

      Hi reg

      Never been exposed to asbestos except a v long time ago for only couple of hours (dilapidated property in Cyprus). Only reason for scan was after a bad fall I couldn’t breathe a few hours later so scan to rule of small rib fractures. The A& E Dr. told me to see a pulmonologist and there isn’t 1 at the hospital I use (not living in UK at moment). All I have is the scan report which doesn’t mention plaquing but says no evidence of pleural effusion on either side . I haven’t got round to finding and seeing the pulmonlogist yet as I don’t seem to have other ‘lung or heart symptoms’   and after this scan I have since been diagnosed with GERD ,Barretts esophagus, chronic gastritis, Sjogren’s Syndrome ,Osteoporosis ( and just got rid of Pityriasis Rosea after 4 months of horrific looking skin lesions) and secondary cataract in 1 eye. A family friend (Dr.) recently said I really should see a pulmonologist so I posted on here 2 see what anyone else who suffers from this thinks… and if this was worth pursuing and Neville replied ..and now you ….so I am hunting for a pulmonologist. Thanks

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  • Posted

    hi Shaq  thanks for the reply,  i asked about  Asbestos  as your symptoms are similar to mine  and i was diagnosed with benign Asbestosis  40 years after exposure to the dreaded stuff,now into my 4th year of dealing with it   I still think, that even thogh your exposure was  of short duration  .it doesnt take long to inhale the fibres.and forty years is an average for it to  show itself.    do mention this to your specialist,, in any event ,good luck with your  investigations
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    • Posted

      Thanks Reg..I have an appointment 2 c a pulmonologist next week and will definitely mention it. 
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