Bilateral Menieres

you have probally been told to cut out salt and Caffeine, just in case you havent

My husband was offerd an op, but declined .They also told him to try No caffeine or salt diet. It doesnt work for everyone, but it has fo him.Good luck

 

I have tinnitus in both ears & MD in my left (For 30 years).  I thought I had finished with the vertigo attacks years ago, only to be struck down several times over Christmas.  My own philosophy is to try and not let the **** condition get me down.  I always carry a few stemetil pills and a sick bag with me just in case.  And keep active, and keep telling myself that md won't kill me.

I know this is probably not too helpful, but at least you're not alone here!

hi Dizzy, sorry ti hear about your recent developement, I have been on this site 6 months and what seems to be a theme is we all have different but similar symptoms, with some people being housebound and others able to continue their day activities between attacks, what is unanimose is we all get litttle help or understanding from the medical proffesion, who seem to label us with with MD if all else fails, so I am interested in your comment 1st and 2nd stage MD, what is this? my MD has changed over the years and I wonder if this is a stage change, Im sure many others would be interested. Have you read any of the Menieres Man books, it talks about it developing in the good ear and is highly reccommeded in these columns, I look forward to your comments and good luck

I too find the Ent team useless,I ended up diagnosing myself because they couldn't agree and they are totally disinterested,and I work for the Nhs.I have vertigo attacks almost daily,some are over quickly and some last a few hours,also feel off balance and woozy a lot of the time.

I work part time but have had a lot to time off work which understandably hasn't, gone down well. I have had a few attacks at work but I don,t get any real warning, my balance is poor. It really helps to see all the posts here so I don,t feel so isolated.It amazes me how little sympathy there is out there because people can,t see anything wrong with you apart from when you are throwing up.

Hi, just joined but have suffered with MD 22 years, i was a Police Officer and collapsed on footbeat one night which was the start. I ended up getting a medical discharge for obvious reasons. I actually do have problems with both sides more on the right than the left. For many years my only true relief came through sleep, but recently i have been woken in the night with vertigo. I concur that the worst thing is that people do not see you when you have an attack most of the time so you always appear fit and well to the public eye.

Tinnitus on both sides at differeing frequencies is like having a bad orchestra playing non stop, but my biggest problem is that i also found recently that i have had a stroke and it has hit the balance section of the brain, they cannot tell me when the stroke occured so its chicken and egg, which came first the stroke or the MD.

 

This is to both dizzysand and elaine, have the ent given you a drug regime at all? 16mg betahistine x3 a day is standard but my ent increased that to double, plus a water tablet every day. I also got a grommet fitted with steroid dexamethasone put in it. Get talking again to your doctor. I totally recommend increasing the betahistine dose. My tinnitus is quieter than it was, the hyperacusis (sound sensitivity) is not so bad as it was, and I havent had a spin since september. On the 16mg betahistine I had brief rushes of vertigo, room shifts for split seconds, on double dose I don't get that. Tiredness makes things worse and too much computer, sound overload not good. Take yourself away shut your eyes and deep breathe. Meniere Man books are very good for self help if you haven't read yet. Please keep us posted? X

Hello PC and Angela. Thanks for your comments

It really helps to hear from other sufferers. Everyone seems to be different and perhaps that is the problem. I have seen a number of different doctors so there is no consistency. One of them said double the dose of betahistine then at the next appointment I saw someone else and he said I need to try and get off SEC AND SERC as they were damping down both ears which causes problems. Then at the next appointment after that I saw the original doctor who said "don't let ANYONE tell you to come off betahistine". Now another doctor has taken over. He is not keen on steroid or gentamycin injections but says the Meniett device is worth a try and take betahistine if I think it helps. Meniett device costs £2K though and isn't supported by NHS. I used to get better between bouts of acute vertigo but these days I am left with what seems to be permanent balance problems. I can't do much without considering if or how to do it beforehand. I always took mobility and balance for granted. Now I feel disabled. Sorry about the rant but Iam quite depressed about this today. Thanks to you all for your replies.

My doctor told me to get one hour of exercise I enjoy at least 3 times a week or daily if possible and to lessen my work schedule and get enough sleep. That seems to help

Me more than anything else.

I walk, swim , ride a bicycle. I should work up a sweat.