Bilateral Scotoma
Posted , 3 users are following.
Following a minor stroke last September, which started with a blind spot in my left eye, I saw a neuro opthalmologist and had some tests done. I have just received a copy of the letter sent to my doctor and it says I have a Bilateral Scotoma. In both eyes apparently and in exactly the same position.
This was obviously known following my tests, but no-one has explained to me what it is exactly, what caused it, whether it's treatable.
I was taking statins after my stroke, but took myself off them as I had terrible side effects. Could they be responsible for this latest problem.
I now have to wait until October for more tests "to check on its progress".
Why don't people explain things to you any more. I am now really worried it might be something serious, and the worry is stressing me so much, I have developed a stiff neck and my headaches are more and more frequent (like pressure in my head) and my vision is blurry and I frequently feel dizzy.
My doctor is rubbish when I asked her about it, she just shone her little torch in my left eye and said "yes, a blind spot".
Can anyone enlighten me please.
0 likes, 3 replies
becky12076 jan19230
Posted
I feel for you, going through a similar problem. I thought I had a stroke, turned out I have a benign tumor pressing on my optic nerve. I'm seeing a specialist on Monday.
In your case, I would make an appointment with the doctor who ran the tests and get my questions answered. I would also get a copy of the doctors' reports and copies of all scans. You are entitled to answers.
Wishing the best for you.
jan19230 becky12076
Posted
Not that easy to do here. I asked to see pictures of my scans after my stroke MRI and was told they weren't available - I think it was just a case of can't be bothered to explain it to you. Same with the MRI I had on my back. Was sent to physio, but he also said he didn't have the pictures. I have had neuro opthal tests and Goldmann Vision Field test which showed up the scotoma, but no action, copy of the letter to my doctor is unintelligable to a non medical person, no explanations and just further tests in 6 months time when I have to have some dye injected into me and more photos taken of my eyes. They didn't warn me last time that when they put the drops in to dilate my pupils, that it would hurt like hell when I went out into daylight - felt like my retinas were being burnt to a crisp.
becky12076 jan19230
Posted
I'm so sorry that it is difficult to get answers.