Bilaterial Vestibular Loss

my balance problem started Summer 2005. at age 75. from 2006 to early 2013

I must have seen a dozen Neurologist and one Orthopedic doctors. They did not know what my problem was nor could they help. Also started to have hearing and vision problems. Up to 2013 I had taken a number of physical therapy treatments.

But that did not help. In early 2013 hooked up with a Neurologist for a year.

During that time all I did was take blood tests and MRI's. By December of 2013,

and with no change, the doctor decided I had mild Parkinson's...... to which I disagreed. The doctor referred me to Jefferson Hospital in Pennsylvania. At Jefferson I was diagnosed with Chronic Inflammatory Polyneuropathy (CIDP) The

diagnoses was based on electrode examination of both legs, and nothing more.

For three years I took twice weekly, every other week, injections of Gammaked

which took three hours to administer. I moved in mid 2016 and located another

Neurologist who, after examination, did not believe I had Parkinson's or CIDP.

The doctors in depth examination for Bilaterial Vestibular Loss was positive.

However, there was no treatment, other then physical therapy, or cure.

I completed another physical therapy, but no improvement. I still get around

using a walker. I have not seen any doctor relative to my vestibular since

March 2017 nor have I had any improvement. I signed up for Vestibular

Trials at Johns Hopkins in 2018, but was not accepted. No hope...... and lucky

I'm an old man and will not have to face this disability much longer.

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