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Bile acid malabsorption

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emma15794
emma15794

So after a secat scan I was diagnosed with bile acid malabsorption, my retention rate was 6.3%. 

I was given colesevelam to help manage it which I have only just taken today. I had a bad episode this morning so had my breakfast and took the tablet. The problem was it stopped the diarrhoea but I still had the pain and the feeling I needed to go, cold sweat and desperate to go like I normally do without the tablet. Has anyone had any experience of this? Also when it started I hadn't eaten anything just drunk some fizzy water (about quarter of a bottle in an hour) does it matter that I hadn't eaten?

i feel tired all the time, keep going dizzy and have started to feel depressed, last time this happened it turned out I was vitamin deficient once I took supplements I felt a lot better but this time my levels were fine.

im just looking for anyone who has a similar problem who can advise on how you manage it. Oh and I have sphincter of odd I on top of this and am due for a HIDA scan next week cry

1 like, 16 replies

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  • 99pAlice
    99pAlice emma15794

    Posted

    Hi Emma! After a SEHCAT scan I was diagnosed with bile acid malabsorption. My retention value was 0. Not enough information about this on the internet unfortunately. I'm OK at the moment after two years of pure hell I hope you are feeling better too. Please feel free to message me. A Xx
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