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I was diagnosed with BAM about a month ago, I have deficiencies in calcium and folic acid, I went back to see my consultant who changed his mind and said it wasn't BAM because I mentioned I had been constipated.I have all the symptoms and have had erratic diarrhoea since my gall bladder was removed two years ago.
Is he right, it's not that because occasionally I'm constipated? It's once in a while but a nice change from going 8 times a day!
2 likes, 17 replies
looloo43 emma15794
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emma15794 looloo43
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He said I couldn't have malabsorption as I mentioned I had been a little constipated, but when I eat vegetables and no fat that's what happens! I'm so angry and annoyed I just want to have an answer and to stop going to the toilet 6 times a day!
looloo43 emma15794
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emma15794
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today has been horrid, 10 trips to the loo. Monday I was out shopping and almost didn't make it to a toilet in time. I'm exhausted and down and can see no light at the end.
roo62 emma15794
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looloo43 emma15794
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syedm emma15794
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I hope this help
thanks
looloo43 syedm
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syedm looloo43
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My BAM was dignosed by having a sehcat test.
I was told be my gastrologist to stay off any type of aspins and pain killer as it may make diarrhea worse . The tablet form of (cholestyramine) came in a capsule shell and i was told by my gastrologist that many people can not tolerate the powder form due to side effects so the capsule will bypass the stomach so people can tolerate it more. Colesevelam tablet is another BAM medicine which works for some people but didnt for me as i cant tolerate tablets.
Most Doctors are aware of FGF19 deficiency when BAM is present but what is the main cause of this deficiency is unknown research is still in progress.
looloo43 sounds like u are managing your symptoms and diarrhea very well also you are able to work which is great hopfully your health will be back to good working order soon but be aware of nhs the moment you mention your symptoms are being well controlled nhs will take less action on investegating your cause of BAM.
I will be apart of more research in the future in imperial college Hammersmith hospital w12 london and i will keep everyone updated .
Here is some more information regarding BAM hope it helps.
https://en.wikipedia.org/wiki/Bile_acid_malabsorption
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syedm emma15794
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emma15794
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the one thing I was confused about was the DR at hospital saying you don't get constipated but my own GP said you will get it, it's very unpredictable.
I was on holiday last week and it seemed to be okay I only had one day where I had to go back home. but this week so far it's been every day
syedm emma15794
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i have read in many reviews on BAM that once gall bladder is removed bile acid diarrhea is common as the gall bladder is ment to hold the bile acid and release when needed. Bile acid is needed to break down fat so the less fatty foods you eat the less bile acid will be released. As i menttioned above try stay away from aspins as they make diarrhea worse in BAM patients . U mentioned about doctors saying you don't get constipated but when i took cholestyramine or colesevelam i got constipated and it made my life hell. Everyones body is different some may get constipated and some may not so for your doctor to say you dont get constipated is wrong. You should try ask your doctor to refer you to dietician and see what other foods may effect you.
hope that helps
roo62 syedm
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nhow emma15794
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