Bile Salt Mal Absorption

Posted , 2 users are following.

I have recently been diagnosed with bile salt mal absorption and I still have my gall bladder!  I had to have an implant - sacral nerve implant - about 11 years ago to due severe bowel problems and now I have this to go alongside it.  I am also getting awful pains in my right hand side - where my gall bladder/liver are.  Waiting for scans to see what is going on.  Was given tablets to take - 6 of them each night and they have made me ill, causing a lot more problems.  I have now reduced them to 3 a night and hopefully this will work.  Scared to do anything after eating a meal as I have been going to the loo up to 20 times a day and unfortunately my implant machine cannot cope with this.

0 likes, 6 replies

6 Replies

  • Posted

    I feel for you bro ,you have been through a lot more than normal person goes through in his lifetime. Don't wait too long I waited over 5 years which resulted in bile duct cancer which spread to my liver . I did all the test and scans and it came up negative and I told them to remove it because I was in too much pain for over 5 years on and off by then it was too late and I have cancer

    • Posted

      So sorry to hear this. I am hoping the scans will be done soon as the pain keeps me awake at night and is there all day,  Difficult to concentrate sometimes.
  • Posted

    Hopefully everything eill be fine
    • Posted

      Well I got my appointment through yesterday for my scans and, true to their word, it is before Christmas.  21st December.  I had to stop my pills for a few days as they were causing me too much grief.  But now, unfortunately, my bile salt mal absorption has returned, which they said would happen if I didn't take the tablets.  Lets hope the scans show what is wrong and get it sorted.

  • Posted

    Pain is getting worse now and has been with me constantly for over 2 days.  Bile salt problem has worsened but I know it's because I am not taking the pills they gave me.  reason being is that they made me feel a lot worse!  I have my scans next Thursday so hopefully they will show what else is going on.

  • Posted

    Had my scans today and still no results.  Good news is I haven't got gall stones. Bad news is I have to have more tests to see if it is anything nasty! Pain still with me and I'm struggling.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.