Bile Salt Malabsorption after Cholecystectomy
Posted , 76 users are following.
I had my gallbladder removed 11 years ago and have suffered with chronic diarrhoea since, but the condition is getting worse. I've been diagnosed with bile salt malabsorption. Most people lose weight with this condition, but unfortunately for me, I have gained around 3 stone. Has anyone with this condition had the added problem of weight gain. I'm at the end of my tether as I can't lose this weight.
14 likes, 143 replies
Guest Unlucky_Shirl
Posted
Your GP will inevitably refer you to a specialist called a Gastroenterologist - and he in turn will order the necessary tests he believes suit your specific miriad of symptoms. It helps to tell your GP about the choleysestectomy being 11 years ago & go from there. He may be your doctor but will probably not recall. I have BAM. Please let me know how it all goes for you.I am taking regular Cholyestermine BID & it has helped considerably.
julie15742 Unlucky_Shirl
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I can't tell you how relieved I am to find others in a similar situation. Until now I've felt like the only one on earth suffering in this way. I'm waiting to have my gall bladder removed, and have been told my condition will worsen - but have no other option but to go ahead once my lungs have improved (but that's another story!!). I've been gaining/losing weight for a few years now, then miraculously lost 3 stone only for my condition to drastically worsen and now over the last 18 months have gained almost 5 stone. Depression has also gotten a hold as nothing I do controls the situation, doesn't matter if I starve or eat. I feel very sorry for all you sufferers out there, but god am I glad that I'm now not the only one. Maybe I should send this link to the benefit people when the time comes round, as they obviously didn't believe my condition and stopped my benefits last year. I've sent a request to join the facebook page in the hope that I'll be able to find you on there for easier access and probably less public postings. Previous medications haven't worked, so this week started on Colesevelam and Ondansetron tablets.
elisabeth42617 Unlucky_Shirl
Posted
my gall bladder removed. . I go to the gym it has made no difference.Its affecting my whole life.xxx
lynda20916 elisabeth42617
Posted
Hi, Elizabeth! You might want to look into a condition called Fatty Liver Disease. This is when the liver becomes unable to digest fats and instead stores them in the body/liver. A person afflicted with this problem becomes unable to lose weight. I have this and was able to slowly reduce the fat and the problem by taking a choline/inositol blend every day (most people don't get the 450 mg daily requirement in their diet) and eating extremely low fat foods. Another amino acid that helps is L-Glutamine. Both these supplements are extremely gentle, and don't cause any digestive discomfort as does Milk Thistle or other herbs identified as "liver cleansing." I lost over 30 pounds.
lynda20916 elisabeth42617
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sally14335 lynda20916
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Hi Lynda, I read with interest your comments on fatty/liver, which I probably have. I have a terrific sweet tooth and very little disipline so, I greatly admire your success. I'm going to try, again, to curb this as I know it gets me in trouble. I have a lot of depression so, of course my "Linas Blanket" or comfort is something good to eat. I am not a lot overweight, just enough to not feel good about myself when I look in the mirror. Being 5 ft. tall doesn't help! Appreciate your comments.
lynda20916 sally14335
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Hi, Sally, and thank you. I had always known I had a fatty liver. Then, I got an ultra-sound which stated that the tech had difficulty imaging my liver because I had so much fat in it! Scared me to death, because it can lead to cirrosis (can't spell it) and other complications. The best thing I did was to buy turbinado sugar packets. That meant I could have a packet of sugar with my tea (plenty of milk) or cereal or sprinkle one packet on berries. I also checked for high fructose corn syrup as an ingredient on what I bought. It's in just about everything. Ugh! But once I got going I had success almost immediately. I'm 5' 4" so at 160 pounds I looked "very low to the ground." Best of luck! xx
sally14335 lynda20916
Posted
Thank you! I will look for the turbinado cereal. I'm already spending a lot of time reading the fine print to weed out high fructose syrup, and, yes, thanks to the industry not giving a 5@## it is in hundreds of products! I still have this horrible craving for sugar and baked goods in particular, so, that is a forever fight for me. Keep in touch.
sally14335
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Sorry, I meant turbinado sugar. I'm upset today and I need rest!
lynda20916 sally14335
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jill55600 Unlucky_Shirl
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I was unable to have my gallbladder removed via keyhole surgery due to a heart problem. However, I too was eventually diagnosed with Bile Acid Malabsorption and found that I gained weight rather too quickly - although this may be age-related as I am 79! I'm not sure what one can do except cutting out obvious fats (half-fat milk, low-fat spreads etc). Have you been prescribed Cholestagel (Colesevelam) tablets? These are usually used for reducing cholesterol levels, but are most effective in treating the BAM. I take three tablets at night - no more
diarrhoea, no more worrying about 'where is the nearest loo?' and no longer having to avoid dining out!
It may be worthwhile having a word with your GP about this. Much of the weight could be fluid retention, especially in the evening when one can feel bloated. I do hope this will help you.
Pally666 Unlucky_Shirl
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michael98050 Unlucky_Shirl
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I had my gallbladder removed 2 years ago. diarrhoea became a constant until about a week ago. I'm not sure how this will turn out but someone put me onto a simple fix which so far has worked. A week without running to the toilet. Apart from swapping to a slightly higher protein diet, reduced processed foods considerably which isnt a bad thing anyway, TRy this for about 4-5 days and see what happens. Buy something called Lepicol plus. I got it from Holland and Barratt. I use one teaspoon full in a morning mixed with 3 desert spoons of greek yogurt and 1 large teaspoon of 100% peanut butter. (make sure the peanut butter doesnt have added sugar etc,) Tesco in UK sell large tubs of Meridian Smooth 100% Peanut Butter. Mix all together. Make sure you drink a glass of water after it. It has transformed my life. Lets see how long it lasts.
michael98050
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jeff75 Unlucky_Shirl
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