Biliary Dyskinesia

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Has anyone has this disorder with the gallbladder??? It is when the organ does not squeeze hard enough to send the bile to the small intestines. I am scheduled for surgery on 2/5/20 because it is working at 6% and should be working at 38% or more. I am eating foods with very low saturated fat and no transfats. Does anyone have any suggestions for me about the surgery???

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  • Posted

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    I have been experiencing very bad URQ and now ULQ pain for the past year. My ejection fraction was 30% but they said that wasnt low enough to cause issues. wondering what they consider "low enough".

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  • Posted

    I had a 3% rate per my scan. i was in pain worsening as time went on, and i was getting headaches and low grade fever. i was told to take out my gallbladder. I am not sure what the options were as it was presented to me that removal was the only option. after surgery i did well for 6 months and now i have something called Bile Acid Malabsorption, which causes loose stools. I have an excess of bile now that sits in my stomach over night with no gallbladder to hold it. The bile is very irritating, some peoples body adjusts fine and absorbs the excess without a gallbladder but many dont. I mediate this with taking a fiber supplement in the morning to get that bile absorbed, its not perfect and i do need to watch my fat intake, I also eat much healthier now. but do occasionally suffer with cramps and urgency to go to the bathroom. the problem I have, also called BAM happens to many people after they have their gallbladders removed. there are facebook groups which have been tremendously helpful because doctors dont always help once you have a problem after surgery.

    good luck. I'm not sure if i helped any, I would ask your physician and maybe get a second opinion, to see if it's possible to live with a gallbladder with a low %.

    JC

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  • Posted

    Hello Betty

    I haven't been on here in a long while & it was all about my daughter. Her GB was working at 14% so she had it removed. It has been awful ever since, her tummy is now paralysed & acid fills the tummy which causes more issues of burning and sickness. She has to have a feeding tube in her intestine ans food no longer empties and she now has what they call Gastroparesis the GB came out 3 years ago, & next week they are putting an Enterra II device in to try and help with the sickness and bloating form the acid in the tummy.

    She often says i want it back in, but it cant be done. Everyone is different, but removing it should be when you have no other choices, if you can help yourself with diet, she says she would have rather put up with that then end up how she is.

    My sister had her GB out and she cant go far from a toilet if she has eaten as it literally goes straight through her & she still has to watch what she eats.

    Some people are fine afterwards, issue is you just dont know until it too late.

    My daughter said if she knew then what she knows now she would never have had it out, yes the pain was bad when it happened but this is now all of the time.

    You have to go with your gut feelings on it, if you can put up with it for longer by lifestyle change that would be good for you, but if its so bad you just cant live with the pain now perhaps you just have to try.

    wishing you the very bes of luck whatever you go with xx

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  • Posted

    I had my gall bladder removed due to a low ejection fraction/biliary dyskinesia. It was the best thing I ever did! Pre op i had horrendous stomach ache and was off work for a long time. I've been back at work for over a year and haven't had a day off sickl. I would say eat light meals after surgery for a couple of weeks until your system settles down. Lots of people have their GB's removed and are fine.

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