Biliary dyskinesia and gb removal
Posted , 5 users are following.
Doc has diagnosed me with the above and says that there is a total drought in the UK of the tracer needed to carry out hida scans so has given me the option of gb removal as only course of treatment available, I have been in hell with the pain for last 3 months, ultra scans only detect a polyp and doc says these dont cause pain. I have agreed to have the op but just want opinions on whether im doing the right thing plse.
THX ALL
0 likes, 15 replies
matt57085 kevin01004
Posted
Pretty pathetic isn't it when we DON'T even have the ability to diagnose. It's all BULL, it's more likely the fact that the tracer is expensive and the FACT that the NHS seem to think NO stones NO problem, when a fair percentage have a problem with the functionality of their gallbladder.
If you're in that much pain you don't really have that much choice in my opinion.
kevin01004 matt57085
Posted
Thx matt, I was really surprised when doc told me that my only option is to have it removed, I got the impression that he was trying to scare me into just coping with the pain until they get the tracer in god knows how many months time but I cant go on like this without seeing a possible end in sight so I agreed to the have the operation. Would have preferred the hida 1st but thats life. Thx for the reply mate.
matt57085 kevin01004
Posted
It really doesn't surprise me, it's a second rate health care system with delay, fob offs and scare tactics.
Mrsoscared kevin01004
Posted
you could allways pop over to calais france kevin and have yr hida scan done their ?
NICE FERRY TRIP LOL
OH AND YOU ACTUALLY CAN EVEN BE REFERED THEIR ON THE NHS BY YR GP .
and even have yr opp their kevin ,thats a fact and a right you have.
i would ask to be refered to the clinic in calais to have hida scan their myself as why would you have yr gallbladder out if you dont need it out , thats just madness.
if you look online you can find the clinic in calais and its even got an nhs sign on the entrance, funny how yr gp didant tell you about this clinic isant it !!!!!!!
INDEEED .
like matt said its all about saving money kevin.
yet the informed from abroad , are constantly manageing to come here on their health holidays for numerous nhs operations lol
THE NHS HOW IT ALL WORKS WHATS REALLY GOING ON ECT IF YOU DIG DEEP ENOUGH WILL BLOW YR MIND KEVIN ITS SHOCKING IT NEEDS REVEALING ITS THE SINGLE BIGGEST SCANDAL IN THE UK I PROMISE YOU !!!!!!!
kevin01004 Mrsoscared
Posted
Hi Mr, I havent worked for 6 months because of this so couldnt even afford the petrol to get to France what with xmas and 4 kids to buy for. I believe what u say about the NHS though and have heard similar tales over the last few tears, the tories would love to privatise it imo and I think theyre trying to run it into the ground first to help them achieve that goal. Thx for your reply.
katie246 kevin01004
Posted
Hi Kevin,
If you have been diagnosed with a gallbladder polyp ideally this should be monitored with annual ultrasounds to keep an eye on growth. I had one 5mm polyp and I experienced alot of pain and discomfort in my URQ. I was also told that polyps never cause pain. My gallbladder was eventually removed 4 years later because the polyp had grown to 7mm. By this time I was in constant pain, I couldn't eat and I was anxious and depressed because of it all. Yet I was still told polyps don't cause pain. When they did the operation my URQ was full of scarring and adhesions consistent with past inflammation. I had also developed chronic gastritis and duodenitis. I was never given a follow up after surgery and never received any answers as to what had actually been going on with my gallbladder but something clearly had been. My removal was nearly 2 years ago and I still suffer with some pain in that area which I believe is probably due to the internal scarring. I am alot better then before removal though.
My advice would be if you are in pain then fight to be heard.
Good Luck.
kevin01004
Posted
Hi Katie, My polyp was picked up about 5 months ago and it was 6mm, had another scan since and it hadnt grown. I too am in constant pain and down to eating 1 meal a day because the pain is so much worse after eating, lost nearly 3 stone in as many months. The depression its caused is unbelievable, cant work, socialise, exercise, sleep through the night, taking tramadol for pain and alcohol about twice a week, I was a nervous about having an operation to remove the gb but not anymore as I need an end to all this one way or another so even death under anaesthesia is not that terrifying now! Thx for your reply
matt57085 kevin01004
Posted
Kevin I lost 8 stone between January and June 2017 as I couldn't eat properly BUT still the NHS couldn't give a toss.
It's worth the risk of the operation in the hope it's your gallbladder as believe me you don't want to end up like me as I'm living in pain plus many other symptoms for over three years.
kevin01004 matt57085
Posted
Sorry to hear that Matt, the gb removal is absolutely no guarantee of living happily ever after is it but i agree that its worth the risk, can u tell me ur story if u have time? did u have urs removed?
matt57085 kevin01004
Posted
No probs
Started to feel unwell Oct 2016 with stomach pain and pain between shoulders GP was a t**t had blood tests and then gave up.
January 2017 developed pain in side + other symptoms and started to lose weight.
March 2017 Everything continuing plus horrific nausea so started to go back to GP who again did bloods and acted like a t**t even though I felt like crap and was loosing more weight and all my symptoms continued.
I visited GP on a weekly basis until June 2017 when my GP finally referred me to Gastroenterology BUT did std referral with a 16 week wait my symptoms continuing and now my urine was dark and poo very light colour so GP still acting like a t**t.
June 2017 A locum GP changed referral and did the urgent cancer two week as I had now lost eight stone in six months and couldn't eat properly.
June 2017 saw gastro who was an ignoramus but I had CT scan.
August 2017 after waiting six week for CT results which showed nothing the gastro tried to discharge me even though all my symptoms are persisting.
Had to hassle the gastro depth nearly three further months until they agreed to give me an ultrasound.
Had ultrasound end of November 2017 which showed something in my gallbladder and a thickened wall so referred for surgery.
End of Feb 2018 After waiting three months saw the surgery team who wanted MRCP and another ultrasound before surgery.
Waied nearly six weeks for these tests and a further six weeks for the results which now nearly made it May 2017.
May 2017 referred back to gastro as MRCP and ultrasound showed nothing.
Oct 2018 after WAITING six months after being referred back to gastroenterology. Who did some stool tests and agreed to a Hida. This all took a further near two months.
December 2018 after fighting to see gastro for stool and Hida results pre Christmas was told my HIDA was normal at 73% but actually that's overactive and my stool results had been lost. I was asked to do stool test again and told verbally and via letter I would be seen again within three months.
January 2019 I was written to, to say stool samples showed inflammation and confirming I will still be seen within three months from 18/12/18.
TO THIS DAY I HAVE HEARD NOTHING AND IT IS NOW ONE YEAR AND ONE DAY SINCE I WAS TOLD I WOULD BE SEEN AGAIN WITHIN THREE MONTHS.
I COULD PHONE BUT THE SECRETARY IS NOTHING BUT RUDE, AGGRESSIVE AND SARCASTIC SO EVERYTIME I EAT I LIVE IN PAIN, FEEL SICK ALL THE TIME, HAVE LIGHT COLOURED POO , DARK URINE AND GENERALLY FEEL LIKE CRAP.
ALSO DURING THIS THREE YEAR SAGA I HAVE BEEN ACCUSED OF CANCELLING AN ENDOSCOPY WHICH I HAD ACTUALLY FAILED TO BE REFERRED FOR WHICH MADE THAT A DRAWN OUT SIX MONTH SAGA SO JUST AS WELL THAT SHOWED NOTHING SINISTER.
THE NHS IS F****D I'M AFRAID!
kevin01004 matt57085
Posted
Jesus! What an absolute nightmare, have u given up on it now then? Are u just living in pain? I dont know how youve coped for all this time coz I know I couldnt. I agree with the NHS being f'd too, the communication within the organisation is a joke, everyone is skilled in the art of buck passing it seems. whats ur next step then? if u have one.
matt57085 kevin01004
Posted
Have the constant ache and feeling of a golf ball stuck under my right ribs, pain between my shoulders and pain every time I eat, nausea, dark urine, light coloured poo.
The fobs, buck passing, wait times, incompetence and now just to never hear anything again despite being told I will be seen within three months.
I'm going to construct a letter direct to the consultant with a copy of all my letters, what's been said and when and also put a complaint in about the secretary who is a complete and total arse who shouldn't be in the role she has.
How long have you been waiting for surgery? Are you just going to go ahead with it?
kevin01004 matt57085
Posted
Good luck with it all Matt, Dr only told me 2 weeks ago about the surgery option so I suppose it will be a while yet before I have it done, but yeah im gonna have it as im living no kind of life at present.
matt57085 kevin01004
Posted
Cheers Kevin, good luck to you too👍
NauseousLaCole kevin01004
Posted
it's been 8 mo, have an update?