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Hi all. I've been reading posts about Gilbert's Syndrome with interest. A few months ago my GP said I may have GS after a blood test revealed my bilirubin level was 48, more than twice the level considered abnormal of 21. The reason I had the blood test was because I'd been feeling very tired despite a good nights sleep every night, heavy eyes and dizziness. I took Serc8 for a few weeks to deal with the dizziness and then it passed.
I had another round of blood tests five weeks later and my bilirubin was still 48. I'm now waiting for an ultrasound appointment to me made. I'd been feeling fine since then until two weeks ago when I was getting localized headache pain above my left or right eye, pressure and pain in my eyes, jaw, teeth and cheek bones as well as neck ache. No tiredness and dizziness this time or any nausea - just face ache is the best way to describe it.
I'd be interested to know what other Gilbert's Syndrome sufferers bilirubin levels are, to know whether 48 is unusually high for GS. My GP doesn't seem too concerned about the level and neither does a friend who is a also doctor (both haven't specifically said it is GS).
I don't know how long I may have had GS for, that's the problem. I could have had it for years and years and some other condition caused the earlier symptoms which then found the GS. Or is GS responsible for me symptoms? Or is my age (38) now making the GS more pronounced? I've had a pale complexion for many years and sometimes my skin appears slightly yellow but you could hardly say it was jaundice yellow.
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