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Bio Melatonin.....anyone else tried this for cfs/me???

Posted , 3 users are following.

michila
michila

my 16 year old daughter has been taking this for 3 months now afer suffering for the last 2 years with diagnosed cfs/me congenitive brain disorder.shes not better but getting to sleep earlier and waking earlier.shes awake usually before mid day now instead of 3-4 pm she still had chronic sore throats and aches and pains but this is a good start to recovery.we have also just brought her an energy light (blue light as she gets migranes) she uses  this in the morning for a 30 min blast of light and again at midday for another,time will tell if this helps at all.

has anyone else tried bio melatonin or an enery light? if so what results did you get?

thanks x

0 likes, 10 replies

10 Replies

  • jackie00198
    jackie00198 michila

    Posted

    I've tried melantonin but couldn't handle even the tiniest doses. I'd end up feeling drugged the next day.
    • michila
      michila jackie00198

      Posted

      hi,sorry to hear that.what dosage was you on? my daugher has just had her dose lowered by 1mg to see if we can stabilise her pattern and maybe lower it more to time where she could enroll in college.i guess is doesnt suit everyone sad x
  • GeorgiaS
    GeorgiaS michila

    Posted

    I use 5-HTP for melatonin and I have used a light box. When I used the light box with St John's Wort tea I got great results but got a rash on my shoulders, which may be because of St John's Wort making some people more light sensitive.

    I'm using St John's Wort at the moment so not the light box, though I'm going to try it again soon with the herb because the rash may have not been because of the combination.

    Anyway either St John's Wort or the light box are excellent for my moods and energy levels.

    • michila
      michila GeorgiaS

      Posted

      thanks for the reply georgia i hope the rash doesnt appear again as it would be great using both together smile 

       

  • guy72767
    guy72767 michila

    Posted

    Hi Michila...how would you best define your daughter's ached and pains? I have just been prescribed Melatonin by my consultant. ..haven't felt up to trying it yet....best wishes...Guy
    • michila
      michila guy72767

      Posted

      hi guy, my daughter would descibe her pains as joint ache like overdoing excercise.she has clicky joints in her arms shouldes and wrists which im told is common in people with me.the biggest change in her since taking the melatonin is that shes now looking forward and actually planning things to do in the future,this was unheard of 6 months ago and a year ago i was bathing her quite often as she was too exhusted to wash herself.worth trying it,it may be brilliant for you too and if not stop and try other things that are there to try. hope you feel better soon x
    • guy72767
      guy72767 michila

      Posted

      Thanks Michila....I am bedbound with profound muscle fatigue and widespread neuropathic pain....I am looking to find out as much as poss about melatonin...thankyou...:-)
    • michila
      michila guy72767

      Posted

      hi guy,poor you thats awful but you will get better as long as you have fight in you too.

      melatonin as far as im lead to believe will not help muscle ache it will only aid sleep and move sleep times back to a normal pattern eventually.i find the more my daughter gets out of bed and moves about the less pain she gets now that her pattern has changed so it must be a knock on affect of streching the muscles that weaken as we sleep?? 

    • guy72767
      guy72767 michila

      Posted

      Thankyou for your input Michila...best wishes,  Guy
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