Biopsy

Posted , 10 users are following.

When you had your biopsy did they take it from the affected site example were you were haveing a flare up or discomfort or from a area that was not sore I had mine in the only spot that I was ok , was reading that it had to be taken from the area that is bad sore or broken I really don’t want to have this done again because it was taken in a healthy spot thanks 

0 likes, 9 replies

Report

9 Replies

  • Posted

    My Dr initially said she would do 3 areas that showed something. She ended up taking 6- swiss cheese vulva! And all 6 spots came back LS. The only spot she did not touch was up near my clitoris because it was so swollen and inflamed and she said the skin was much more senditive/ thinner here and she didn’t want it to hurt too much. 
    Report Reply
  • Posted

    She removed a white patch, I have more. It came back as severe LS, with nests of squamous cells. So, using betamethasone until October, then back for another biopsy. The Lab wants a larger sample, as they said that differentiated squamous cell carcinoma could not be excluded. My other Oncologist said they think it's pre-cancer. One step at a time, just take care of yourself!!

    Report Reply
  • Posted

    My Biopsy was done on affected spot, came back with LS is on Clobetasol 0.05 % for 4 weeks then 3 times a week. The biopsy area hurt for 7 days. Not as bad now. Still in early phase of treatment, but was told more biopsy will need to be done, and if I notice any other issue come right back.

     

    Report Reply
  • Posted

    My biopsey was done on a spot near my vagina.  I have no white spots but do have silver plaques. The biopsy came back positive for LS. I was prescribed clobetasol 1x per day at night for a month and then follow up with Gyn then. I had no itching but have fusing of  the Labia minora.  Some burning.  Also using borax soaks every day and then apply the clobetasol.  

    Report Reply
    • Posted

      Your manifestation sounds similar to mine. No white, but I think "silver" might apply to what I've got going on (tried a Google image search but no luck); no itching but burning; and fusing of the LM and I think also incomplete adhesions of the clitoral hood.

      Report Reply
  • Posted

    My biopsy was taken from an area doctor referred to as scar tissue.  The vulva is completely gone now so I think the "scar" area was really just the last thickened vulva tissue that was left.  Regardless the biopsy from that are came back negative for precancerous tissue.  She also extracted tissue from another area where the skin color was white.  That came back precancerous.  She went back in a second time and extracted even more tissue which was normal and healthy which came back even more significantly precancerous and they wanted to do another extraction surgery.  My concern at the time was that these extractions were causing the skin at the opening of the vagina to become tightened.  So I chose to go to a oncologist who specializes in LS.  She said no more surgery at this time.  She is monitoring it's progression every 4 months.  It is supposed to have a slow progression and in some cases once it is extracted the body can defend itself on it's own and destroy whatever it is left.  Personally I think that's a long shot from what I am reading.  They claim due to the progression that I have had LS for a very long time - many years.  However my husband, doctor and myself know that the deterioration of my vulva happened within a years time.  I had a pap every year and everything was normal looking.  I had none of the common side effects of LS.  I went to the gynecologist March 2018 because I found the thickened skin which looked like a white lump. 

    The situation now is that the skin around my vagina (caused by the extraction surgery) is so tight that I can not have intercourse with my husband without pain and tearing the skin. I have used a very tiny amount of coconut oil - a little goes a very long way.  This has helped with lubrication and I also think with healing.  I find warm baths - no soap - just plain water also help with the healing process.   

    I am allergic to the premarin steroid cream. 

    In conclusion - I wish I had gone to the oncologist after the fist precariousness biopsy came back.  She would not have performed the extraction surgeries.  Her philosophy is to wait and watch.  When the time comes for extraction she will try to repair what has already been done.  Hope this helps.  Good luck with everything.   

    Report Reply

Join this discussion or start a new one?

New discussion Reply

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up