Biopsy Negative but symptoms there ...?
Posted , 5 users are following.
I just got a biopsy done 2 weeks ago, the doctor said he does not see anything bad but he wants me to come back to get a bigger biopsy (to examine a larger area) My friends and family think it's all in my head but my vulva has been going through so many changes since last year of January and I really think I have LS. It looks like one side of my labia minora is starting to get small. I get so itchy at night. I just don't know whats going on and if it isn't LS then idk what it is!!
Here is some pics
https://patient.info/forums/discuss/18-year-old-with-lichen-sclerosus-634590
1 like, 3 replies
hope4cure livelovelaugh77
Posted
No it's not all in your head . We get it on this forum. Itching can drive anyone mad. Keep going thru the diagnostic process. Don't give up.
Nancy_K_B livelovelaugh77
Posted
Hi LiveLoveLaugh!
gosh dearheart. good lord, that 3 photo with the white right down the middle is definitely LS. add that to the terrible itch AT NIGHT and you can be certain. Our doc didn't listen to you enough to get it... itch at night with white.
Your family has no right to belittle your excellent google research.
if you haven't been readng here n a while please do look up my posting called "Miantentence/Recovery from Lichen Sclerosus" I worked up a protocol from readhin like crazy for us all. Much of it other sufferers who have been dealing much longer than I had already figured out, but I dfinitley found lots of o-factors for each of the suppleens that help put it in "remission". YOu don't need your doctor's inconclusive biopsy to tell you that you need to begin eating and living a leaky gut diet and or autoimmune diet and or anti-inflammatory diet.
I also worked up a whole protocol of nutritional supplements for lichen... I don't quite remember the title to that one, but check it out. you'll feel SO much better.
Assilem7477 livelovelaugh77
Posted
I got chronic inflammation on my biopsy, but I am missing 1 labia minora and a small piece of skin is over my clitorus. I didn't have to get a bigger biopsy, but I did see a specialist afyerwqrd because my regular gyno didn't feel comfortable telling me it was LS. Specialist didn't make me do another biopsy. I would try a different doctor. Biopsies hurt!