Biopsy results are back

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biopsy results are back- No cancer cells showing , and confirmed Lichen Sclerosus

Obviously i am hugely relieved about the non cancer cells but feel equally sad about a definitive diagnosis (even though i know its really positive to have that !) such a mixed bag of emotions.

Starting on Clob and monitoring it and she will see me again in 6 months . She did say its a particularly severe case as both sides are badly affected and all the way around so it may take some time to get on top of it.

She said theres an increased chance if it developing into cancer so to keep an eye out for ulcers etc but i have one patch thats ALWAYS broken and sore so think i would find it hard to tell !

such a lot to take in !

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2 Replies

  • Posted

    That's really good news on the cancer side, Wendy. And I was told by dermatologist that the heightened risk of developing cancer from managed LS is only 5% - same percentage risk as any of the population getting any form of cancer anyway, which puts it in perspective.

    Keep diligent about moisturising in between using the steroid and varying the products so your skin doesn't get used to any one product causing it to not have any benefit.

    good luck. x

  • Posted

    Wendy - I know it's a lot to take in, but it'll get better. ❤️ Hang in there! I got diagnosed in May - and my doctor put me on Clobetasol every night and she wants to see me after 6 months of that - to see how it's working. My white patches are gone - and I'm not getting any itching anymore. I also soak in Borax baths 2 to 4 days a week.... so I think that may be helping. But after the Borax baths - I make sure to moisturize down there because the skin gets "tight feeling" and uncomfortable. So - as long as I moisturize after my baths - and do the Clob every night - I'm hoping when I see her in November - she tells me all looks good and she wont have to do anymore biopsies! (praying!) The only thing that's still not "right" - is the fusing of my hood to the clitoris. I'm hoping that unfuses with my Borax baths... if it doesn't - I'll be talking to her about it in November.... I need to get that unfused. 😕 It bothers me (sexually AND mentally.) 😛

    Hang in there Wendy - hopefully your LS will clear up quickly now that you're starting the clob. 😃

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